The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
Discuss the article on the Forums.

Have you always had sinus problems with infections all throughout your ME?

Discussion in 'Immunological' started by rosie26, Dec 25, 2016.

?

Has sinus infections always been a part of your ME symptoms?

  1. Yes

    32 vote(s)
    64.0%
  2. No

    18 vote(s)
    36.0%
  1. rosie26

    rosie26 Senior Member

    Messages:
    2,190
    Likes:
    4,165
    Just wondering if there is a subgroup of ME who gets the constant sinus problems with infections whenever you overdo it. I have had this all the way through my ME. I have it quite bad at the moment, sore throat with it, also. I don't want to take antibiotics because of the bad reaction I had last year to two antibiotics that I was given. I have never had problems with antibiotics until then.

    It's summer here and I am going try and see if I can get to the beach at least twice a week and gently soak in the seawater and get some up my nose and see if I can get some control of this sinus infection. I haven't been to the beach for years, it's only a half hour by car or 45 minutes by bus. The journey always puts me off but I guess if I can lie down at the beach under a tree that will help rest me for the journey back home. I think this is my only other decent option, seawater.

    How many others of you have had this sinus problem all the way through? Anyone else get the aching in the front sinuses of the face (cheeks)?
     
    merylg and Izola like this.
  2. CFS_for_19_years

    CFS_for_19_years คภภเє ɠรค๓թєl

    Messages:
    1,540
    Likes:
    3,428
    USA
    I had chronic sinus infections at the start of this illness. My allergist told me that chronic sinus infections were a sign of allergies being out of control and that the best course to take was allergy shots. It's been at least 20 years now since I've had a sinus infection.

    Before I went on the course of allergy shots, which took a year or two, I saw a naturopath several times who was able to cure me of the chronic sinus infection I had then. I don't recall what she gave me, but she brought a stop to them at that moment in time. However, I did follow up with the allergy shots.

    If you have allergies, for now at least you could try rinsing your nose with a Neti pot once or twice a day to remove allergens from your nose.

    I don't know what horrible reactions you had to antibiotics, but they must have been pretty bad to put up with chronic sinus infections now.
     
    Jennifer J, merylg and rosie26 like this.
  3. Valentijn

    Valentijn Activity Level: 3

    Messages:
    12,427
    Likes:
    32,804
    I have chronic sinus problems. But I stopped getting sinus infections when I went on antibiotics for Lyme and Bartonella.
     
  4. alex3619

    alex3619 Senior Member

    Messages:
    11,634
    Likes:
    29,669
    Logan, Queensland, Australia
    I have answered no because the question asks "always". If it asked "often" I would answer yes. I always have some sort of sinus issue, but its not always related to infection. Indeed my hypothesis is that a subgroup have some kind of vascular issue that resembles sinusitis, but isn't, and so is not easily treated.
     
    Jennifer J, JohnM, purrsian and 5 others like this.
  5. Thinktank

    Thinktank Senior Member

    Messages:
    1,015
    Likes:
    992
    Europe + Asia
    I have chronic sinus inflammation in an obstructive way, but never had a sinus infection since ME.
    I believe that my sinus inflammation stems mostly from food allergies and (pseudo) intolerances.
     
  6. hellytheelephant

    hellytheelephant Senior Member

    Messages:
    587
    Likes:
    2,524
    S W England
    I have had sinus problems on and off throughout, together with persistent sore throats, although I am finding that the GF diet has really helped to eliminate this.
     
    rosie26 and merylg like this.
  7. SilverbladeTE

    SilverbladeTE Senior Member

    Messages:
    2,781
    Likes:
    3,195
    Somewhere near Glasgow, Scotland
    not infections, but constant sinus problems: harder to breathe through them, gotta dig the bogies out like hacking coal to keep breathing :p

    though when I got two teeth out and in both cases they lead to severe sinus infections
    infection + M.E. = horrendous :(
     
    merylg, rosie26 and dannybex like this.
  8. dannybex

    dannybex Senior Member

    Messages:
    2,993
    Likes:
    1,642
    Seattle
    Ditto what @alex3619, @Thinktank, and @SilverbladeTE said. Sinuses never really drain well at all, nose is very stuffed, dried (esp in the mornings) and blocked up w/thick mucus. Even when I was a kid when I got a sinus infection, it was always thick and gluey, and w/a deviated septum, it was always a challenge to get that wad of gum out, but when I did, it looked like (spoiler alert!) a mass of mucus and (almost) brain matter. :)

    But like Alex, it comes and goes, but is there most of the time. It most recently flared in early 2013, and got worse after abx, suggesting fungal issues and/or worsening of food intolerances as a result of killing off beneficial bugs w/the abx.
     
    merylg, rosie26 and MountainMonkey like this.
  9. perchance dreamer

    perchance dreamer Senior Member

    Messages:
    965
    Likes:
    1,188
    I have chronic sinus problems, too, in spite of surgeries and twice a day irrigations at home. I get thick mucous, and bacteria cling to it.

    I have had both pseudomonos and a fungal infection for some months now. I've tried nebulizing medicine and am now using medicine in my sinugator, but don't appear to be getting better.

    My ENT said since the topical treatments haven't worked I should go on Cipro since it and Levaquin are the only 2 meds that eradicate pseudonomos. I'm doing research and trying to figure out if the cure is worse than the disease.

    Sinus ozone treatments did get rid of a sinus staph infection before, but they haven't helped with the pseudonomos.
     
    merylg and rosie26 like this.
  10. perchance dreamer

    perchance dreamer Senior Member

    Messages:
    965
    Likes:
    1,188
    I wanted to provide a link to the NeilMed Sinugator. I think a lot of us with sinus problems irrigate our sinuses, and I've found this much more thorough than using either a Neti pot or the squeeze bottle.

    Some people reviewing on AZ have found that the sinugator stopped working, but I haven't had a problem and figured it's not just a huge investment, anyway. I don't advise dropping it on the floor, though, the way I did with my first one:

    https://www.amazon.com/NeilMed-7-05...qid=1482774135&sr=1-3&keywords=sinugator&th=1
     
    merylg and rosie26 like this.
  11. MountainMonkey

    MountainMonkey

    Messages:
    2
    Likes:
    5
    Ah, yes.... The orange-grey brain matter looking blob... :wide-eyed:

    I've had sinus problems for 35+ years.
     
    merylg, dannybex and rosie26 like this.
  12. Mel9

    Mel9 Senior Member

    Messages:
    293
    Likes:
    620
    NSW Australia
    Me too
     
    merylg and rosie26 like this.
  13. perchance dreamer

    perchance dreamer Senior Member

    Messages:
    965
    Likes:
    1,188
    These sinus problems really suck. When my sinuses are particularly clogged such as when I have an infection, my sleep is seriously affected. My ENT explained that when you don't breathe well through your nose it over activates the sympathetic nervous system, which affects sleep.

    @MountainMonkey, your avatar pic is quite something!
     
    merylg and rosie26 like this.
  14. MountainMonkey

    MountainMonkey

    Messages:
    2
    Likes:
    5
    Mel9 and rosie26 like this.
  15. perchance dreamer

    perchance dreamer Senior Member

    Messages:
    965
    Likes:
    1,188
    @CFS_for_19_years, do you remember if you reacted with increased symptoms when you had the allergy shots?

    I started on prescription sublingual allergy drops in Nov. I do get increased mucous and congestion, so my allergist had me back down on the number of drops and lengthen the titration schedule.
     
    merylg and rosie26 like this.
  16. CFS_for_19_years

    CFS_for_19_years คภภเє ɠรค๓թєl

    Messages:
    1,540
    Likes:
    3,428
    USA
    I eventually had fewer symptoms (plugged up ears and nose) when I had the allergy shots. The only other reaction I had to allergy shots was a local reaction to the shot itself - an itchy arm.
     
    merylg and rosie26 like this.
  17. rosie26

    rosie26 Senior Member

    Messages:
    2,190
    Likes:
    4,165
    I was going to give an extra option Alex but decided against it. I wanted to know more whether it was a problem high on the list or not, kind of thing, for other MEs.
     
    merylg and alex3619 like this.
  18. anne_likes_red

    anne_likes_red Senior Member

    Messages:
    924
    Likes:
    527
    I had none 'til I got mono 14 years into my illness. Since then severe sinus problems plagued me...ie: debilitating headaches and repeat infections on the right side.
    I have not had many problems the last few years (except in Scotland for some reason!), as I'm doing much better overall but I believe some low level sinus issue is still present...
    (I didn't answer the poll because I haven't had obvious sinus problems the whole duration of my illness.)
     
    merylg and rosie26 like this.
  19. belize44

    belize44 Senior Member

    Messages:
    593
    Likes:
    1,137
    Pennsylvania
    I've had sinus problems on and off since becoming immobilized by this disease. I also have a deviated septum. Part of the problem that aggravates it all is dust mites! Since our apartment has carpeting it has been an ongoing battle which I have finally surrendered to. I just don't have the energy to keep after it all. Most of my issues are inflammation, sleep Apnea, and being hypersensitive to many antibiotics.
     
    merylg and rosie26 like this.
  20. rosie26

    rosie26 Senior Member

    Messages:
    2,190
    Likes:
    4,165
    I'm going to be a bit out of order replying everyone, brain fog. And it could take a week or more. Thanks for all your replies.
     
    merylg likes this.

See more popular forum discussions.

Share This Page