Have I just stumbled on the best possible therapy for CFS/ME/POTS sufferers?

[wastwater]

Wasn't vagus nerve stimulation once a popular idea for severe treatment resistant depression too

 

[Tired of being sick]

Do you know if this is being considered for a clinical trial for pots/cfs/me

My Email was never answered,so no it is not being considered..

 

[sillysocks84]

I realize this is an old post, but I think since the vagus nerve arrest b cell activity it would actually be pretty beneficial to the cfs me pots people that would respond to rituximab. Rituximab also work through taking out b cells. So I really am hoping trials are being done for this for us as this would be something to try before rituximab since rituximab can have side effects. Could be that it would take a longer time of being consistent in stimulating the vagus nerve. Rituximab, too, does not work for all of us.

 

[sillysocks84]

@Tired of being sick you should try them again and tell them about the b cell link and it'll probably work since rituximab is having good results, also b cell related.

 

[Tired of being sick]

Transdermal Vagal Stimulation for POTS - Tabular View - ClinicalTrials.gov

Transdermal Vagal Stimulation for POTS
This study is currently recruiting participants. (see Contacts and Locations)
Verified June 2015 by Vanderbilt University
Sponsor:
Vanderbilt University
Information provided by (Responsible Party):
Andre' Diedrich, Vanderbilt University
ClinicalTrials.gov Identifier:
NCT02281097
First received: October 21, 2014
Last updated: June 1, 2015
Last verified: June 2015
History of Changes

• Full Text View
• Tabular View
• No Study Results Posted
• Disclaimer
• How to Read a Study Record

If you have private insurance, for the most part, P-STIM is covered
for at least reimbursement..

I have a feeling this study will produce significant results.
however
medicaid and medicare will find a way to debunk it as they
did in all other positive results..


Another option is surgery to stimulate the Vagus nerve or (VNS)
Right now the only way you can get surgery implantable device
to stimulate the Vagus nerve is epilepsy..

Although a study of major depression patients with an implantable device
to stimulate the Vagus nerve who did not respond to all other treatments.
An astounding 33% responded very well to the treatment....

however medicaid and medicare did not approve the treatment
to be covered for major depression..

 

[sillysocks84]

If you have private insurance, for the most part, P-STIM is covered
for at least reimbursement..

I have a feeling this study will produce significant results.
however
medicaid and medicare will find a way to debunk it as they
did in all other positive results..


Another option is surgery to stimulate the Vagus nerve or (VNS)
Right now the only way you can get surgery implantable device
to stimulate the Vagus nerve is epilepsy..

Although a study of major depression patients with an implantable device
to stimulate the Vagus nerve who did not respond to all other treatments.
An astounding 33% responded very well to the treatment....

however medicaid and medicare did not approve the treatment
to be covered for major depression..

Exciting! It's being looked at for pots!