The 12th Invest in ME Conference, Part 1
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Have I just stumbled on the best possible therapy for CFS/ME/POTS sufferers?

Discussion in 'General Treatment' started by Tired of being sick, Sep 18, 2014.

  1. Tired of being sick

    Tired of being sick Senior Member

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    Had a visit with my pain specialist on a follow up "failed" morphine pain pump trial today..

    And she suggested that we try a P-STIM trial if insurance will approve..

    I just despairingly said, yeah I guess so..

    So I left the office with my head down thinking this will be just another failure.
    Until I read the brochure that is..

    OK,
    First off,P-STIM is basically a super technologically advanced pinpoint accurate acupuncture device that you wear on your neck with 3 electrodes attached to your ear for 4 days that reduces pain anywhere on your body
    significantly,by stimulating endorphin production..

    However,

    The pain claim is not what sold me..

    What sold me hook line and sinker is..

    P-STIM increases arterial blood flow and oxygenation up to 60% through vasodilatation!!!

    And it can stimulate the Vagus nerve!!

    Now if this is true..

    This will be the best treatment for CFS/ME/POTS beyond light years compared to all other treatments/therapy
    to date!!

     
    Sancar, helen1, Wayne and 2 others like this.
  2. BadBadBear

    BadBadBear Senior Member

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    The vasodialation aspect would scare me away, I always feel much worse when my BP is too low.
     
    WillowJ and taniaaust1 like this.
  3. Martial

    Martial Senior Member

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    If it increases blood flow to the brain I would give it a try, given its reasonably priced of course.
     
    PennyIA likes this.
  4. Iquitos

    Iquitos Senior Member

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    @Tired of being sick Is this something a regular acupuncturist could have access to, and administer?
     
    Sancar likes this.
  5. Tired of being sick

    Tired of being sick Senior Member

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    My insurance denied it so I'm sure it probably works wonders..

    Only commercial insurance covers this P-STIM procedure..

    Medicaid/Medicare will not cover it period..

    However, if you have $960.00 laying around you can purchase one treatment...
     
  6. *GG*

    *GG*

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    Can you not purchase the product for that price? One treatment?!

    GG
     
    Sancar likes this.
  7. Hip

    Hip Senior Member

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    I could not find any links to research papers on the P-STIM website, only a handful of testimonials. Where are they getting the data that the P-STIM can increase circulation of the blood about 50-60%, treat gangrene and treat chronic pain?
     
  8. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Here are some studies I found in their brochure:
    http://www.p-stim.com.ua/files/pstimbrochure.pdf

    The short- and long-term benefit in chronic low back pain through adjuvant electrical versus manual auricular acupuncture.
    http://www.ncbi.nlm.nih.gov/pubmed/15105215
    Electrical stimulation of auricular acupuncture points is more effective than conventional manual auricular acupuncture in chronic cervical pain: a pilot study.
    http://www.ncbi.nlm.nih.gov/pubmed/14570667

     
    Sancar and Hip like this.
  9. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Here's a forum discussion of some patients who tried the device:
    http://neurotalk.psychcentral.com/thread190071.html

    I couldn't find any pricing information for the P-STIM. While looking for that info, I came across a device called a Neurova NeuroStimulator that claims to work in a similar fashion for $295. Here's the explanation for the switch:
    http://neurostimulator.weebly.com

    http://www.chronicpaintherapy.com/neurova-neurostimulator.html
    It looks like a doctor's prescription for the device would be necessary.

    Here's a page that shows where to apply the device:
    http://www.chronicpaintherapy.com/live-pain-free.html

    This looks like it would be a bit challenging to do by yourself.
     
    Last edited: Sep 20, 2014
    Sancar, Wayne and Tired of being sick like this.
  10. tandrsc

    tandrsc

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    Sancar and CFS_for_19_years like this.
  11. Wayne

    Wayne Senior Member

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    I recently read that the mineral lithium (often sold as orotate or aspartate) has been shown to increase circulation to the brain. Also, apparently, experiments have demonstrated lithium supplementation increases grey matter in the brain by as much as 3-5% within 30 days in 80% of the participants. --- It might be a cheaper way to support brain circulation for those with budgetary constraints that really don't allow for being able to purchase a device costing hundreds of dollars.
     
  12. Tired of being sick

    Tired of being sick Senior Member

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    One treatment
    =
    $960.00 (in PA)
    =
    one disposable P-STIM device
    =
    wear for four days or 96 hours then dispose of the P-STIM device..

    So for instance if you need 10 treatments, the P-STIM therapy will cost you a total of $9,600.00
     
  13. Tired of being sick

    Tired of being sick Senior Member

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  14. Hip

    Hip Senior Member

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    Thanks for those links to the research, @CFS_for_19_years.

    The interesting thing in the P-STIM video was the use of that pen-shaped device to measure the electrical resistance of the ear, looking for the points where the electrical resistance is at a minimum, which signifies a high density of nerve endings (and thus the best place to insert the tiny electroacupuncture needles).

    It would be very useful to have just that electrical resistance device, to work out the location of these nerve hotspots of the ear. That way, even if you were using some other ear electroacupuncture system, you would know where the best spots on the ear are to place the needles or electrodes.
     
    CFS_for_19_years likes this.
  15. ukxmrv

    ukxmrv Senior Member

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    I think that I may have had this treatment or at least one very much like it.

    The name was familiar to me when I read this thread and when I looked at the devices they looked familiar. Also some of the information on line and using around the ear / head. Must have been through one of my acupuncturists.
     
  16. Tired of being sick

    Tired of being sick Senior Member

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    I just sent an email to:[​IMG]


    On how I could go about recommending the start of a clinical trial study using P-STIM to treat:
    POTS/CFS/ME//fibromyalgia/chronic pain syndrome/and CEBV with POTS at the forefront..

    Why?

    POTS is text book Vagus nerve dysfunction in my book..

    The Vegas nerve's responsibilities are to regulate heart function rate blood flow/breathing/body temperature/and the entire digestive system all of which have absolutely gone haywire on myself personally since child hood..

    How many of you would be interested in a P-STIM clinical trial for all of the above if the trial would become available?.
     
    sillysocks84 likes this.
  17. Iquitos

    Iquitos Senior Member

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    Count me in.
     
  18. manna

    manna Senior Member

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    I have the Healthpoint EA device and it also has an auricular stimulator. It's the original hand held electro-acupuncture device designed by Dr. Julian Jessel Kenyon, who also treats M.E. patients at his clinic. It's fairly easy to treat ear points. I bought it for £2.50 at a car boot sale, but I was lucky as they're £200 plus new, though I've seen them go for much cheaper on ebay. I'm probably missing something but I don't see how the P-STIM could be better? This might be a cheaper and more accessible option. The auricular stimulator is used for longer periods.
     
  19. sillysocks84

    sillysocks84 Senior Member

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    Do you know if this is being considered for a clinical trial for pots/cfs/me
     
  20. sillysocks84

    sillysocks84 Senior Member

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    @manna did this help you? What specifically were you using it for if you don't mind me asking?
     

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