I only remembered now that I hadn't finished off this thread. Apologies for that. Just to say we had our appointment with Nigel Speight. A lovely, warm man who was so respectful of my young lad, asking him direct questions and being sympathetic in all the right places. It makes a huge difference. Anyway he confirmed the ME diagnosis and has written letters to my young lads GP and also his hospital consultant. For all the good the latter will do....but still it's good to have these things in writing. He also recommends that I take him out of school completely for the time being as his pattern has been to get reinfected when he goes into school and then spends months in a relapse. I have since met with the school and although I am going to register him for next year we have all agreed that he will not be attending classes until at least this year is over and we will review everything in December. He has written a letter for the Dept of Education stating that he is unable to attend school at the moment. Dr. Speight recommended our GP try Melatonin for the sleep reversal and we recently had a two week trial. Unfortunately however he seems to have had a bad reaction to it with severe stomach cramps and diarrhoea so the GP has stopped it. So it's back to not sleeping all night. My next step is to enquire about bringing him to KDM in Belgium to get some thorough testing done at least. I have fired off an email to his clinic to ask some questions and to see if KDM sees minors as well as adults. Once again, sorry for taking so long to get back on this thread. How is it that weeks and months seem to just fly by?