The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

Have Belgium Apologised?

Discussion in 'General ME/CFS News' started by Firestormm, Dec 12, 2012.

  1. Firestormm

    Firestormm

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    Cornwall England
    Google Translation of Newspaper article dated 5th December 2012: http://translate.google.co.uk/translate?hl=en&sl=nl&u=http://www.demorgen.be/dm/nl/2461/Opinie/article/detail/1544168/2012/12/05/CVS-is-te-lang-geminimaliseerd-de-patienten-zijn-te-lang-miskend.dhtml&prev=/search?q=http://www.demorgen.be/dm/nl/2461/Opinie/article/detail/1544168/2012/12/05/CVS-is-te-lang-geminimaliseerd-de-patienten-zijn-te-lang-miskend.dhtml&hl=en&safe=off&tbo=d&biw=1280&bih=719&sa=X&ei=a7bIUNz5NIaG0AXs64GQAg&ved=0CC8Q7gEwAA

    Original Article: http://www.demorgen.be/dm/nl/2461/O...seerd-de-patienten-zijn-te-lang-miskend.dhtml

    Picked up from a post on IiME Facebook earlier. Not seen this before. Anyone care to comment?

    Well, I guess then they are asking for an apology as opposed to apologising - which was how it was posted on Facebook.
     
  2. Marlène

    Marlène Senior Member

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    Edegem, Belgium
    Interesting article indeed. However it is just ONE article.

    In the meantime, the minister of Health is ignoring ME-patients. She does not even honor her own words. Doctors defending the CGT-GET model refuse to discuss the "benefits" in front of an audience because they know they are none. Meanwhile people are still excluded from medical coverage as usual, scientific proof is denied, ...

    People die from lack of medical assistance too.
     
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  3. Esther12

    Esther12 Senior Member

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    Not too sure I understood that translation... I think it broke my mind.

    Independent assessments are such an important thing. If we leave it to BACME to collect and analyse their own data, we can be pretty confident that they are not going to find themselves to be rubbish - just as homoeopaths are relentlessly impressed by their own successes, or use the fact the people like feeling cared for and tend to report some improvements in subjective health when this occurs, even if more external measures do not improve.

    Without a more sceptical and accurate approach towards making claims about efficacy, it's impossible for patients to be able to give informed consent for these approaches.

    Some of the 2006 Belgium assessment is available in English. It's linked to here, and Tate Mitchell pulled some bits of interest out: https://listserv.nodak.edu/cgi-bin/wa.exe?A2=co-cure;31f5ed0a.1203c
     
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  4. Firestormm

    Firestormm

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    Was 'chatting' to a mate from Belgium last night and asked for a summary interpretation of this article. Did my head in too Esther :)

    He had this to say:

     
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  5. Esther12

    Esther12 Senior Member

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    Thanks a lot for that Fire. The translation made me realise how little I understood of the original.

    I hate this mentality: it only ever seems to be pulled out when those with power have got it wrong! The key point is that those taking money for 'helping people' have not really done so. What sort of income will be given to those who have spent their time wrongly reassuring patients and making false claims about the efficacy of the treatments they provide? Why should they be able to retire to greater financial comfort than the patients they manipulated? So long as there is no accountability for quackery, patients will go on being mistreated by those taking money for 'helping people'.
     
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