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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Haukeland Rituximab follow-up study, 21 July 2013: "even higher rates of effect"

Discussion in 'Latest ME/CFS Research' started by Sasha, Jul 22, 2013.

  1. Firestormm

    Firestormm Guest

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    Cornwall England
    I agree. I am not happy at the thought that a drug like this might be 'thrown' at anyone and everyone with this diagnosis - especially this diagnosis - on a 'sink or swim' basis. I am sure it won't be but very little has yet to be forthcoming from the original authors about why they think those that responded did so. It is a critical nut to crack. If ME is to be established firmly as an autoimmune condition then it must be better explained. Hopefully, this is what will come out of the next publication. Hopefully it won't simply be a repeat of the first. Although a repeat would be nice but you see what I mean :)
     
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I've seen studies where they use the same people as both control and treatment groups, by first following their progress without treatment, and then with, and sometimes again without. Obviously with an illness with so much natural variability as ours, this would be relatively difficult, at least without using objective measurements to determine and match the stage of the illness with and without treatment.
     
  3. Kate_UK

    Kate_UK Senior Member

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    Roy S and Bob like this.

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