Has Immunovir helped you?

[Singout]

I've read a similar post from 2012, but wondering if anyone has something to add. I've had M.E. since 2008 and it's been a lot worse since 2013. This is the first prescription drug I'm thinking of trying for it (not including what I'm taking for my orthostatic intolerance) and I'm a bit nervous.

It's hard to get an RX for in Canada: my doc has studied with Dr. Klimas and is suggesting her pulsing protocol.

My M.E. started in 2008 with a virus. My daily symptoms are fatigue, light-headedness, brain fog, some joint pain. When I crash I get flu-like symptoms: feeling feverish (without a temp), malaise, sore throat.

If I get bad reactions initially, should I quit right away? Or is that part of the process (a "die-off"?)

Other posts mention NK function levels: we can't get that tested here in Canada, so I don't know what mine is.

Thanks!

 

[RUkiddingME]

Hi there I started pulsing Imunovir last April. It's really hard to tell if I am doing better on it but it definitely didn't make me worse. I started at a lower dose then built up to the 6 tabs a day week one and three and 2 tabs a day week 2 and four. Weekends off and every third month off. I haven't had my NK cells tested since being on it. I used to be extremely low. I am also in Canada and my ME/CFS prescribed the Imunovir for me. I joined an online program which thought me strict pacing and restorative movement and that has made a bid difference for me. Good luck

 

[MartinK]

Im on Immunovir (Isoprinosine in Czech Republic) now...with Valtrex.
Because, it looks like I have a EBV reactivation...

In Czech, there is no problem with Isoprinosine.
I have 1g 3x day...

Someone experiences with this dose?

yet no response - Im on this treatment 4 weeks.
Its really important drink a lot water with this medicine - it elevates uric acid and is difficult for the liver.

My NK cells results are + - 60 last 1 year...

@Singout - I have same symptoms as you! ....PM!

@RUkiddingME - pulsing? Do you have any information why it's important to pulse or not?

Im interesting about some progress on other users here on Immunovir (Isoprinosine) too! ;-)

Martin

 

[RUkiddingME]

The last time I had my NK cells tested I was at a 6! I would love to know where I am at now

I inserted a screen shot of info I found about pulsing

 

[Singout]

Hi there I started pulsing Imunovir last April. It's really hard to tell if I am doing better on it but it definitely didn't make me worse. I started at a lower dose then built up to the 6 tabs a day week one and three and 2 tabs a day week 2 and four. Weekends off and every third month off. I haven't had my NK cells tested since being on it. I used to be extremely low. I am also in Canada and my ME/CFS prescribed the Imunovir for me. I joined an online program which thought me strict pacing and restorative movement and that has made a bid difference for me. Good luck

Thanks! It's good to know it didn't make you worse. Where in Canada are you? I was told we couldn't get our NK function tests done in Canada.

 

[Hip]

Some ME/CFS doctors like KDM say that the cheap supplement inosine is just as effective as Imunovir (it's spelt with one "m"). Imunovir contains inosine. 1

Oxymatrine is another good immunomodulator to try if you have enterovirus infections. Immunomodulators can make you feel worse before you get better, and feeling worse is often a sign they are working.

Some info on the various immunomodulators used in ME/CFS is given in this post.

 

[MartinK]

thanks a lot with info of recommends staggering dosages of Immunovir!
my insurance paying him, thats great!

many of my problems point to the fact, I need help Th1
(viruses reactivations, inflammation, lot of allergy)
...and Immunovir will help with Th2 to Th1.

I have some relapses last weeks - maybe it's just after use Isoprinosine and Valtrex...

@Hip thanks a lot with great post with immunomodulators!
you're making a good improvement with Nexavir - next month I go to KDM (now waiting for results) - I wonder if he will prescribe it to me...

 

[Hip]

you're making a good improvement with Nexavir - next month I go to KDM (now waiting for results) - I wonder if he will prescribe it to me...

I think in fact the substantial improvement I experienced was not due to Nexavir, but due to the high dose selenium protocol I started at that time, which I am still taking.

 

[frederic83]

you're making a good improvement with Nexavir - next month I go to KDM (now waiting for results) - I wonder if he will prescribe it to me...

Nexavir (4ME) is not avaible on Kalida shop anymore ? I can't find it.

 

[LaurelW]

I've been on Imunovir for the last year, on a biweekly schedule. The first week I take one tablet 3X a day Monday-Friday. The second week is 2 tablets 3X a day M-F. Weekends are always off. I haven't heard about this every third month off schedule--will have to ask my doctor about it.
I have continued to improve on the Imunovir after being on Ampligen for 6 years which stopped right before I started the Imunovir. I think the Ampligen got me up to a certain level and then the Imunovir was able to take it from there.
I had a really bad crash during 2009-2011 and I tried Imunovir during that time, but I had to go off of it after three weeks because it made me so much sicker, and I was already bed-bound.
I had an ultrasound recently for gastritis and they found a very small kidney stone which I didn't have before, and my uric acid level is slightly elevated (my doctor has me get it tested every three months). I'm wondering if drinking more water would help this situation.