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Has anyone used Inositol IP6 - Increases NK cells and may other helpful attributes

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by SunMoonsStars, May 23, 2015.

  1. SunMoonsStars

    SunMoonsStars

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  2. SOC

    SOC Senior Member

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    While I agree IP6 may help with low NK cell function, I'd look for a better source of info.
    This does not sound like someone to be taking medical advice from. ;)
     
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  3. SunMoonsStars

    SunMoonsStars

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  4. SunMoonsStars

    SunMoonsStars

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    Yes I agree with the comment on sources. Not using the resource for medical advice. Just posting general info because I was curious and hoping others might be able to share some experiences or more info in relation to CFIDS and if it is helpful in immune modulation.
    I do not see it listed on this forum upon a search unless I did not do that search correctly.
     
  5. SOC

    SOC Senior Member

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    Part of the question is whether it's wise to "enhance" your immune system if you don't know exactly what the problem is. If you have autoimmune problems, "enhancing" your immune system might be counter-productive.

    That said, if your test results show you have low NK cell function, then IP6 might be beneficial. I'm hearing that top ME/CFS specialists are suggesting inosine or immunovir if you have low NK cell function, rather than IP6. I don't know why.

    You'll probably get more hits at PR if you search for inositol.
     
    roller likes this.
  6. barbc56

    barbc56 Senior Member

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    When I do a Google search, all I get are natural news and alternative sources. That alone makes me suspicious. However, I could be wrong but I need other sources besides this.

    I can already see possible problems but would rather check the facts before saying more.

    Thanks.

    Barb
     
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  7. SunMoonsStars

    SunMoonsStars

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    Hi
    Yes I searched Inositol too but I will try again.
    Yes. I need new testing for NK cell function as its been years but it was a result of 2 and near non existent.
    Yes. I agree I need to be getting more testing and more detailed view of immunity. I am have appt for blood draw for tests this next week.
    Reason I was looking into this now is I have been battling EBV and when I use Tagamet I have had an immediate change and response and I am looking for some other options that are more natural for the future in the area of Immune stimulation.

    Do you have a list of the best immune tests that you can recommend and when I go for my testing I want to go over the list my doctor is going to run as well I want to talk about any others that people get here that have been helpful.

    Which have been the most helpful or most run for CFIDS/ME patients.
     
  8. SunMoonsStars

    SunMoonsStars

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    I do agree. Not much out there.
    Jarrows brand of the supplement actually prints on the label it increases NK cells and I was surprised they can do that.
    There is a disclaimer of course but still. I don't see claims like that often on a supplement label.
     
  9. SOC

    SOC Senior Member

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    I'd say it's not clear what are the best immune tests for PWME. Who is ordering your immune tests? Would s/he know what you need based on your symptoms?

    My best guess at immune tests would be NK cell number, NK cell activity, lymphocyte counts (CD4, CD8, CD3, and probably others) and possibly immunoglobulins and IgG subsets depending on your history and symptoms. But I'm guessing and could be all wrong. :p I'm just going by what's been abnormal in my family's immune testing. Others may have some better ideas.
     
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  10. SunMoonsStars

    SunMoonsStars

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  11. SunMoonsStars

    SunMoonsStars

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  12. adreno

    adreno PR activist

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    Lots of research for anyone interested. A PubMed search for inositol hexaphosphate gives 3481 hits.

    I've tried it and didn't feel much, except increased daytime somnolence.
     
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  13. SunMoonsStars

    SunMoonsStars

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    Thank you for the response. I have a couple doctors but... the one running the tests.. is an integrative oncologist who also treats array of people too with auto immunity / disfunction. He knows every detail about me and has reviewed every test I've ever had in my past too. He is open minded to adding extra tests upon my suggestion at times if it might apply and he was not going to run it initially. I find out next week exact ones he is planning on when I go to his office for the lab work as he draws the blood there.
     
  14. SunMoonsStars

    SunMoonsStars

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    Thanks for the response.
    Funny thing is the immune stimulation items make me sleepy during the day too. I wonder why that is. Thing is it has replaced my horrible fatigue so I do not complain about it for now.
     
  15. adreno

    adreno PR activist

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    I didn't even feel immune stimulation, just tiredness. I am guessing it's the inositol part, as regular inositol has the same effect on me.

    If you are looking for immune stimulation, prebiotics like medicinal mushrooms or arabinogalactan are much more powerful.
     
  16. barbc56

    barbc56 Senior Member

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    The only research I could find on PUB MED is by Abulkalam Shamsuddin who is mentioned in the article.

    .

    This doctor also has a patent on his formula this vitamin. Look at the label . 81+UsUfSmKL._SY679_.jpg

    Barb
     
  17. barbc56

    barbc56 Senior Member

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    Unfortunately, rat studies do not always translate to human studies.

    .

    If this IP6 really has medicinal properties, then it's a drug. ANY drug has side effects.

    If I seem to be a little harsh is in one of the articles it said that IP6, cured someone's Cholangiocarcinoma, or cancer of the liver duct. It is not curable except by liver transplant but in most cases by the time it's discovered, it's too late. My best friend died from this last year. She did not use alternative treatment but I have read so many stories where people who have a treatable form of cancer, chose alternative treatments. There have been several cases in the news over the last year.

    Barb

    ETA

    Cholangiocarcinoma is caused by ulcerative colitis, an autoimmune disease. No amount of fiber could have prevented this other than some possible symptom control.
     
    Last edited: May 24, 2015
    Changexpert likes this.
  18. barbc56

    barbc56 Senior Member

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    I only see "Supports Natural Cell Defense*". I'm looking at a picture but it shows front and back. Do you have an older bottle? I don't think the FDA guidelines would allow more than that and may have stopped them from printing that.

    I'm just speculating, here. :rolleyes:

    Barb
     
  19. barbc56

    barbc56 Senior Member

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    Yup, I was looking for IP6.

    Thanks!

    Barb

    ETA I see you weren't replying to me. It still helped, though!
     
  20. barbc56

    barbc56 Senior Member

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    I hope ever thing is okay.

    Barb
     

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