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Has anyone successfully treated mycoplasma IgM and Cunningham / PANDAS autoantibodies?

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Jesse2233, Aug 18, 2017.

  1. Jesse2233

    Jesse2233 Senior Member

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    Dr Chheda has found high IgM titers for mycoplasma pneumonia and sky high Cunningham autoantibodies. I understand that PANDAS (a pediatric neurological disease that the Cunningham panel was designed to diagnose) is often caused by an ongoing mycoplasma infection (or strep / Lyme).

    I was wondering if anyone has treated their mycoplasma with antibiotics (such as azithromycin) and seen a drop in Cunningham autoantibodies as well as an improvement in symptoms. I've seen users on PANDAS messageboards have success with this (sometimes in conjunction with antibiotics and IVIG, plasmapheresis, or immunosuppression), but have seen very little about the Cunningham panel on PR.

    Labs below for reference.

    upload_2017-8-18_19-55-57.png


    upload_2017-8-18_20-2-4.png
     
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  2. drob31

    drob31 Senior Member

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    Is the first test an autoimmune panel?
     
  3. Jesse2233

    Jesse2233 Senior Member

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    Yes, the Cunningham panel
     
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  4. Learner1

    Learner1 Forum Support Assistant

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    What lab does it? And how is it related to mycoplasma?
     
  5. Jesse2233

    Jesse2233 Senior Member

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  6. Learner1

    Learner1 Forum Support Assistant

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    Thanks, @Jesse2233 ! I have mycoplasma pneumoniae and a bunch of other antibodies... and am on IV doxycycline and azithromycin. I guess I'll hope for the best here....do you suppose I need another test at this point?
     
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  7. Jesse2233

    Jesse2233 Senior Member

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    It'd be interesting to see if they've gone done, but if you're feeling better that's what counts!

    Reading through the treatment protocols for PANDAS is really interesting...
    On plasmapheresis
     
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  8. Learner1

    Learner1 Forum Support Assistant

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    Thanks! I think I'll skip the CBT and SSRIs...:rolleyes:

    I start IVIG on Wednesday and am hoping for the best...:balloons:

    I've also followed Shawn's saga on other threads... He's sure explored the gamut...

    One step at a time, though!
     
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