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Has Anyone Read Dr. Myhill's Book?

Discussion in 'General ME/CFS Discussion' started by Arius, Jun 9, 2017.

  1. Runner5

    Runner5 Senior Member

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    PNW
    First red flag for me is that the web site is unprofessional and lacks a clear easy to find list of the doctors credentials in the area of CFS or just anything -- but I found a review of the book online...

    I have been on loads of diets since becoming ill trying to see if anything at all worked. Although all diets do have an effect upon a person one way or another, and I think we all have a preference for how we eat, nothing I ate, no diet undertaken in the last four years, effected the CFS in any way. (Keto is slang for ketosis a state of utilizing fat for energy because you have depleted onboard glycogen storage i.e. it's a low carb diet).

    For personal reasons I choose to be starch based and follow the Dr. McDougall way of eating (plant based, starch) and find it's the best fit for me personally. So I am very high carb and have had no increase or decrease of symptoms, although gradually over time I seem to be declining in health, but generally I feel lighter and better eating plants.

    I'm not sure about which supplements she advises to take etc. I have personally gone through the long drawn out blood work procedure to test my adrenals (they were normal) and lots of thyroid tests (all normal).

    When I was on Facebook though there were so many people contacting me personally to sell me what we call in the states, "snake oil cures." Anytime you are ill with anything and online it is incredible what people will do to get your money. That's just my general clause of beware of people peddling cures.

    *cheers*
     
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  2. Richard7

    Richard7 Senior Member

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    @Arius I have not read Myhill's current book. There was an earlier book she had as a free download from her website that I read about 3 or 4 years ago. I found it useful. I find her site useful. I still would send someone to Myhill if they had no idea about ME/CFS.

    I use her site much like I use threads on these forums. I do not expect her to be an authority. We do not know enough about ME/CFS to pretend to be authorities. But she has a lot of clinical experience and has spent a lot of time studying and thinking about ME/CFS

    If you search the forums you will find some who like Myhill's stuff and some who really do not like her at all.

    If it helps at all I also use ALCAR (I used to have continuously painful muscles, 1g AlCAR per day stopped that). I tried low FODMAPS with the GAPS diet and my brain just stopped. For me that was the worst thing ever. I was doing it to try to deal with SIBO. If that is your reasoning too I found that using Betaine HCL, digestive enzymes and ox bile worked to deal with SIBO. I did this on something like the stone age diet Myhill's recommends.

    I have recently been using antifungals (nilstat at the moment) that seem to be fixing up the lower gut, but I am still working on that (I think I also need to deal with PoTS so that I can get the right blood flow to my gut and it can work propperly).

    I do not have a spare 25 pounds and the book is not on audio, so I do not imagine that I will read the book, but those are the only reasons.

    @Runner5 Re ketosis. Ketosis is not simply burning fat for energy. You can burn a lot of fat without producing ketone bodies. And playing around with different ways of getting energy to see how things work for you makes a lot of sense in the light of the metabolomic data from Armstrong and McGregor.

    If your high carbohydrate diet has a lot of fibre and you have the right microbes you may be burning a lot of butyrate. I have a ketonix breath acetone metre that was often deep in the red (highest level of acetone) when I was on too many carbs to be producing my own ketone bodies and not taking MCT oil or exogenous ketones.
     
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  3. overtheedge

    overtheedge

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    If your talking about her Diagnosis and treatment of CFS second edition, I have read it, found a lot of stuff she advocates to be true. Betaine HCL and digestive enzymes rapidly cleared up some very severe chronic constipation I had for a number of years and most likely was the reason my CFS cleared up that first time, though, I blew it by taking on a very excessive amount of work and burnt out but I definitely had a good run, might never have been chronically fatigued again if I had taken a few months after I felt well to consolidate my health.

    Have found her mitochondrial recommendations to be great. CoQ10 and ALCAR did amazing stuff for me but then petered out, just had a test done and see I have normal carnitine levels but my CoQ10 is just the tiniest bit away from being low so I'm working on getting that to the high normal range. D-ribose which she recommends still works for me, might be the best supplement I have though I don't use it often since I'm testing out other supplements and don't want to interfere with that so I don't plan to use it until I have quite a number of supplements together that I know do good work to all test and see if they will get me well. Myhill is one of the few who recommend that ribose be taken throughout the day instead of in three lump doses as ribose has a short half life, this has been what has really made the supplement for me, ribose barely did anything for me before I started supplementing it this way. I dissolve 2.5g's ribose in water and take it in thirds every 30 min and reap good results, sometimes take upwards of 20g's per day, though, you should know that it can cause problems for you if you have blood sugar issues.

    The thing that annoyed me about her book is that many of the tests she recommends are either only available through her or entirely unavailable unless you work as a researcher in a lab, maybe she is trying to blaze a trail, I don't know, the tests sound very useful, I've wanted to try out the fat biopsy one for pesticides, volatile organic chems, and other toxic substances but can't find any way to. Same thing with the lactate dehydrogenase studies she recommends to find out what organ systems are having troubles. From what her website says she isn't accepting new patients as she is overburdened with work, at least for now, this makes it difficult to get any tests done through her unfortunately.

    I have taken extensive notes from the book and I'll post some quotes I found interesting below:



    These are just a few of the tests she recommends, there are quite a few more in the book




    This next part is on theory, I also found the same theory in "Chronic Fatigue Syndrome, a treatment guide, 2nd edition" it might be in the section on her as the book goes over many of the big name doctors in CFS treatment





    Been thinking about trying this next one out since I was in a fire and inhaled a lot of smoke from burning plastic not long before I came down with CFS:

    Throughout the book she strongly suggests CFS sufferers try B12 and Magnesium through injection and suggests ways to get your doctor to help you do so as well as providing advice on how to inject such as heating the magnesium to room temperature, timing, dosage, and other things. She advises getting B12 injections regardless of blood levels. I've noticed a lot of CFS doctors recommend B12 injections, gonna have to try that

    A good number of things from her book can be found word for word on her website

    I've read over her website a good bit as well and will post some of the links that I think you may find interesting

    http://www.drmyhill.co.uk/wiki/Fermentation_in_the_gut_and_CFS
    http://www.drmyhill.co.uk/wiki/CFS_-_The_Methylation_Cycle
    http://www.drmyhill.co.uk/wiki/Hypochlorhydria_-_lack_of_stomach_acid_-_can_cause_lots_of_problems
    http://www.drmyhill.co.uk/wiki/Pancreatic_exocrine_function
    http://drmyhill.co.uk/wiki/Detoxification_-_an_overview
    http://drmyhill.co.uk/wiki/Tests_to_investigate_CFS
    http://www.drmyhill.co.uk/wiki/Haematology_-_interpretation
    http://www.drmyhill.co.uk/wiki/Biochemistry_-_interpretation
    http://www.drmyhill.co.uk/wiki/Tests_to_investigate_CFS
    http://drmyhill.co.uk/wiki/Magnesium
    http://www.drmyhill.co.uk/wiki/B12_-_rationale_for_using_vitamin_B12_in_CFS
    http://drmyhill.co.uk/wiki/What_to_do_if_you_get_better_with_magnesium_and_B12_injections?
    http://drmyhill.co.uk/wiki/What_Happens_If_Your_GP_Refuses_To_Give_The_Magnesium_And_B12_Injections
    http://www.cc.nih.gov/ccc/patient_education/pepubs/subq.pdf
    http://drmyhill.co.uk/wiki/Detoxing_-_Far_Infrared_Sauna_(FIRS)
     
  4. overtheedge

    overtheedge

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    forgot to mention
    the methylation cycle was another way she steered me right, though to be true she wasn't the one who got me into it but I'm much more likely to try something by someone if they recommend a lot of things in their protocol which I have already found to work well for me, never had any overt reactions from the methylation supplements but my homocysteine was high as I have a c677t muttion and the methylation supplements corrected that, could have been a real problem if it hadn't been fixed as I understand it

    about the book, there is a good deal more in there than I could cover here, a lot of it is on diagnosis and testing, stuff it might help to read to make sure you haven't missed some underlying cause, I probably did cover all of her standard supplement recommendations though. The book has a lot of logic to it which i like, a lot of good ideas for dealing with cfs beyond just supplements
     
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  5. Richard7

    Richard7 Senior Member

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  6. overtheedge

    overtheedge

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    Wish I'd purchased the kindle version, it makes it so easy to take notes, just have to download the free amazon kindle app so you can read it on your PC. The only annoying part is that whenever you copy n paste from kindle to Word it always has the book information two lines below your text, I've found it easiest to not erase that info each time but to just post in between your text and the info text and let the info text build up below and once you have taken all the notes your gonna take highlight all the useless text that will have built up and delete it.
     

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