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Has anyone ever seen Dr. Bateman?

Discussion in 'ME/CFS Doctors' started by Koivy, Apr 1, 2013.

  1. Koivy

    Koivy

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    Has anyone ever seen Dr. Lucinda Bateman? I'd love to hear your experiences, especially if you've had to travel for the appointment. I'd like to know if you felt that the travel was worth it. Is she well-rounded and focuses on all aspects of the disease, or is she more focused on one thing (such enteroviruses, or rituxan, etc).

    Thanks!
  2. Boost

    Boost *****

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    I thought you meant Patrick Bateman

    [​IMG]
  3. LaurelW

    LaurelW Senior Member

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    I'm Dr. Bateman's patient. She doesn't focus on one particular treatment. I didn't have to travel to see her since I live in the same city.
    L'engle likes this.
  4. Koivy

    Koivy

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    Boost Hahaha thanks for the much needed laugh!

    LaurelW Can you tell me more about your experience with her? What do you like and dislike about her? Does she also help take care of autonomic and sleep disorders, and all the other stuff that comes with ME? Has she helped you? What kind of treatments does she do? Has she done extensive testing for you? I would like to know more about her and she doesn't seem to be mentioned much here on these forums, other than her advocacy and research. If you prefer to tell me in PM, that would be fine too. thanks!
  5. EMilo

    EMilo Elizabethmilo.com

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    @Koivy and @LaurelW , I'm curious about this, too. I'm thinking of flying to see her from Seattle and would love to know patients' experiences.
    WillowJ likes this.
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Last I heard she had a waiting list for her waiting list! :(

    Sushi
    WillowJ and EMilo like this.
  7. Gingergrrl

    Gingergrrl Senior Member

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    I was wondering if anyone knows if Dr. Bateman prescribes anti-virals (for patients with high viral titers) or if she takes a different approach? I did a site search and couldn't find anything. I am not going to be seeing her but am very curious from a discussion in another thread and from reading a talk that she gave. If she does not do anti-virals, what is her treatment? Thanks for any info.
  8. WillowJ

    WillowJ Senior Member

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    Here is the statement from OFFER Utah's site explaining her policy on infections:

    (I reformatted.)
    EMilo, Gingergrrl and maryb like this.
  9. Gingergrrl

    Gingergrrl Senior Member

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    @WillowJ Thank you for all the info and is "Offer Utah" Dr. Bateman's own site? I do agree with her that anti-biotics and anti-virals should not be given out lightly (especially if the person has not actually been tested and shown to have specific infections first.) I also agree that they should be monitored carefully for both positive and adverse effects. It sounds like she does prescribe them (or at least approves of them) in specific cases.
    Snowdrop and WillowJ like this.
  10. SOC

    SOC Moderator and Senior Member

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    My question for Dr B would be what she considers to be test results that indicate a need for antivirals. Many of us have seen doctors who go by the standard rule-of-thumb that if you have a low IgM and high IgG, that only means you had an infection in the past. They do not believe that chronic EBV, CMV, or HHV6 exist. They will only give AVs with a high IgM, indicating a new infection. If Dr B is one of those doctors (and yes, some ME/CFS specialists still think that way), then it will be the rare case where she will use AVs.

    ME/CFS specialists who are experienced using AVs in PWME understand that that rule of thumb assumes a healthy immune system -- which most PWME do not have. Those specialists have more fine-tuned interpretation of pathogen tests and when AVs are needed in PWME. If Dr B works by those principles, then she will use AVs in many, but certainly not all, PWME.

    To be clear -- I am completely opposed to using AVs just because someone has a CFS diagnosis. It's important to verify that there is a chronic infection. The issue that's in question is what criteria are used to verify a chronic infection.
  11. Gingergrrl

    Gingergrrl Senior Member

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    @SOC Very well said and you summarized exactly what I was trying to ask (but did a better job LOL.) When my ND tested me for EBV, I had high titers of IgG, IgM, and early antigen (but it is well over two years since I had mono.) She said this was proof of either a chronic or re-activated infection of EBV and started me on the natural anti-virals as she does not prescribe the prescription av's. She did not test me for other viruses but now I've been tested for everything by Dr. K and waiting for results.

    My confusion came when I assumed that all the true CFS experts prescribe av's (when appropriate) and then it seemed like Dr. Bateman does not (although I could be wrong about this.) I believe she is one of the true experts so I started to get confused and second guess myself. Thank you for the reassurance!
    SOC likes this.
  12. knackers323

    knackers323 Senior Member

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    Is there much harm in trying antivirals without test results just to see what effect they have?
  13. Gingergrrl

    Gingergrrl Senior Member

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    @knackers323 That is a very good question and I am afraid I do not know the answer but am going to post it in my other (long!) thread from yesterday to see if anyone knows. My gut instinct is with the av testing, you know which viruses you have and the Dr can choose wisely which av to prescribe (vs. doing it blindly.) Although if av testing is not available but av's are, I guess it couldn't hurt to try?

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