@
Dster
Thank you for your thoughtful and considered response to my (and others) questions here regarding your experience with LP.
I confess I remain skeptical but am glad for you that you have found it works.
In your last post (#280) I'm still a bit squeamish about the idea that our responses to internal and external stimuli are inappropriate.
And I do have one more question for you regarding the efficacy of LP. I know I would feel more comfortable with the narrative of your experience if You would confirm for us here that you are in no way receiving compensation for sharing your experience here.
I'm sure you can understand why that would be information we'd want to know.
And if you are willing to continue to engage with us it would be great to know how this treatment works out for you long term.
Would you say that all your symptoms are 100% resolved?
Can you do any activity you want without experiencing any repercussions now?
And do you need to continue to use the techniques you learned from LP or is that no longer necessary?
If you could just clarify for me, in post #275 you mentioned your symptoms one of which is PEF, I don't know what that is.
Perhaps you didn't give the full laundry list of symptoms but from what you did write I'd like to point out that while your experience of these would have been quite debilitating it doesn't match the literally dozens of symptoms present in typical ME presentation. While you have the larger more familiar symptoms, pain fatigue, cognitive fog you don't seem to have any of the other symptoms that differentiate ME from any number of other illnesses. Dr's sometimes use the 'loose' Fukuda or Oxford criteria for diagnosis that essentially put anyone with lingering fatigue into the same bucket diagnostic wise.
Generally with ME other typical symptoms would be: various sleep disruption issues--unrefreshing sleep, sleep interruption, problems falling asleep, --migraines, severe and frequent vascular headaches especially ones that mimic sinus pain, --fasciculations, all over the body and frequent, --sensory issues, sensitivity to sound, light, smell, touch, sensitivity to temperature is very common and so on,
--heart related issues that can be related to POTS many and varied, --bowel symptoms many and varied, --autoimmune type symptoms, reynauds phenomena, dry eyes or Sjogrens syndrome, and many others.
With the exception of bowel issues, very common in ME I have chosen examples that I am familiar with from personal experience.
We all want to get well. Really we do. I just don't see how LP can effectively cure all this? What am I missing?