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Has anyone been completely cured of CFS?

Discussion in 'General ME/CFS Discussion' started by cosmo, Jul 19, 2013.

  1. Dster

    Dster

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    Raindrop - many thanks for your congratulations, it means an awful lot to me to have someone on this site acknowledge me in this way. I have two experiences to discuss - one is my own and the other is someone who I saw every work day for 6 years. Me, I guess I was reasonably high functioning - I could work full time, but if I exercised I crashed, agonising muscle pain, fatigue, infections, feeling very blue (I won't say depression, that is something else). Even if I didn't exercise I was exhausted by the end of the working day and went home and lay on the sofa until bedtime, then bed until it was time to get up again. If I summoned up the energy to play golf, I would walk off barely able to put one foot in front of the other. Now, since LP that has all changed! As for my colleague, she was much worse than me, as I've reported in previous posts. Dreadfully I'll and with a range of very very frightening symptoms, all of which I experienced first hand. Again, the LP cured her very quickly - not without a huge amount of willpower and effort on her part. the cost of LP is very expensive - £650 for a three day training program. Once I'd done it I was needing to do the process 5-10 a day minimum to stay healthy - but now, a few months later I have to do it only a few times a week. My colleague is the same - in the early days it was really hard to maintain ones improvements, but slowly it becomes easier and easier until it's second nature . I can honestly say I was becoming very very down about the long term future living with ME - LP has resurrected me from the half life and now I LOOK FORWARD to doing stuff again! I wish everyone reading this would give it a fair crack - the book is only a tenner if you can't afford the course.
     
  2. Kina

    Kina Moderation Team Lead

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    Why would anybody on Phoenix Rising bother with a training program that treats psychological illnesses. You can't be cured of a physical illness by standing on a piece of paper saying "I will no longer do ME". Stop insulting us.
     
    heapsreal, RustyJ, Valentijn and 2 others like this.
  3. Dster

    Dster

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    If you read Parker's book, you will see he exhibits a huge amount of sympathy for sufferers, and nothing he says and nothing about LP trivialises ME in any way at all. He recognises it is a shockingly debilitating, frightening and dreadful experience. And the assertion that people are financially incentivised to post positives about their LP experience is typical of the naysayers on this site. Utterly untrue and wholly without foundation. The LP course I and my colleague attended weren't bogus at all. They did what they hoped to do - cured us both and we are now free of ME and living wonderful lives - my life now is I suspect a version of most peoples idea of heaven. Enough said.
     
  4. Kina

    Kina Moderation Team Lead

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    I don't care one whit if Phil Parker exhibits a huge amount of sympathy for sufferers. Really is he going to say he is unsympathetic. How much money would that make him?

    He recognizes that it is a debilitating illness, yet says it can be cured by self-hypnosis, standing on an X saying you aren't going to do ME anymore. It's pure bullshit. Psychobabble at it's best.

    Stop insulting us.
     
    heapsreal, Valentijn and A.B. like this.
  5. Dster

    Dster

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    Kina, I don't know why you respond to all my posts with such venom. I'm sure it can't be healthy. No one is insulting you in the least. My post merely lays out in factual detail my experience - and the experience of many others. I understand you might not agree, but why take it as a personal insult ? I and my colleague have been cure of ME by the LP? Period.
     
  6. Dster

    Dster

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    Cheers Rubens, I'll respond to you PMs soonest :)
     
  7. Dster

    Dster

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    Ruben even ! Darned spellchecker!
     
  8. Kina

    Kina Moderation Team Lead

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    I am not replying with venom. I am just laying out the facts that LP is a sham, quack, pyramid scheme that doesn't cure people of any physical illness.

    How about providing some scientific proof that LP works. You can't.

    It feels very healthy to me to be able to address the quackery that exists when it comes to ME. When you come to our forum stating you have been cured of ME by psychological mumbo jumbo then I feel I must respond. It is insulting because you suggest that people with ME are able to be cured by LP. No we don't have deep rooted psychological problems that are solved by affirmations and mantras. I don't believe you or your colleague had ME or you would still be sick. Whatever was making you feel ill was likely down to some problem that could be treated by psychological means.

    Please stop pushing LP on our forum, because it's a ME/CFS forum not a forum for psychological illnesses that can be treated by glorified CBT.
     
    heapsreal, brenda, Valentijn and 2 others like this.
  9. Mij

    Mij Senior Member

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    "If you read Parker's book, you will see he exhibits a huge amount of sympathy for sufferers, and nothing he says and nothing about LP trivialises ME in any way at all. He recognises it is a shockingly debilitating, frightening and dreadful experience. And the assertion that people are financially incentivised to post positives about their LP experience is typical of the naysayers on this site. Utterly untrue and wholly without foundation. The LP course I and my colleague attended weren't bogus at all. They did what they hoped to do - cured us both and we are now free of ME and living wonderful lives - my life now is I suspect a version of most peoples idea of heaven. Enough said."

    @Dster ME is not an "experience", it's a debilitating neurological disease.
     
    brenda, Valentijn, lansbergen and 4 others like this.
  10. Kina

    Kina Moderation Team Lead

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    Why on earth isn't this training program a worldwide answer to curing ME?

    Simply because it doesn't do anything but lighten the wallet.
     
    heapsreal, Valentijn and A.B. like this.
  11. Dster

    Dster

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    , wordsmithing me is simply not a credible response - one "experiences" cancer, flu and ME - the phraseology does not and more importantly is not meant to trivialise any of these illnesses. The fact that you react so badly to mere semantics is very telling
     
  12. Dster

    Dster

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    It cured me and my colleague and we both agree it was the best GBP650 we've ever spent
     
    Cheesus likes this.
  13. Kina

    Kina Moderation Team Lead

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    @Dster ME is not an "experience", it's a debilitating neurological disease.
     
    Valentijn likes this.
  14. Dster

    Dster

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    So has anyone ever been cured of CFS/ME?
     
  15. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @Dster

    Could you share with us the testing that showed your dysfunctions of the immune system, brain, autonomic nervous system, & gut and the positive tests for pathogens--viruses, intracellular infections etc., that are necessary for a diagnosis of ME under the CCC or the ICC?

    Before and after please.

    Sushi
     
    heapsreal, brenda, Valentijn and 3 others like this.
  16. Kina

    Kina Moderation Team Lead

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    It cured you of something but not ME because psychological therapy doesn't cure physical illness.

    I suspect you have been brain-washed.
     
    Valentijn likes this.
  17. chipmunk1

    chipmunk1 Senior Member

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    If you really believe this: Please see your psychiatrist and have your lithium levels checked. They might be too low.

    If you are doing this for financial gain: Please get your hands off this forum greedy bastards.

    People like you are not helping. They are making our lives far worse and complicated.

    Bingo.

    If they really cared about people they would release the program for free. In the meantime people are dying of ME.

    Not only did it cure you within a short period of time it did also make your life 'heaven'.
    Something that even many healthy people are striving for without ever achieving it.

    Most religions promise paradise only in afterlife and this one gets you there in a few days for just £650.

    OK. At 51 you got the fitness level and energy of a 20 year old just in 3 days. Did your hair grow back as well?

    Personally i don't view this as proof that LP works. Quite the contrary. Something doesn't sound right here. Either you have been completely brain-washed and are currently out of touch with reality or you aren't accurately reporting your results.

    Then it is just enhanced CBT quackery. Strange that there aren't many people reporting similiar results with CBT most have poor results. I have yet to hear from someone who got into paradise with it. Why should this one be so much better? There is no reason to believe that this one is sooooooooo much better. It might be more effective at brainwashing certain individual though.

    From an amateur analyst perspective i would say your subconcious is trying to free itself from the artificially imposed perception of well-being influencing your rational mind into posting here to hear from others that what you are doing isn't working. I think this makes at least as much as sense as LP.
     
    Last edited: Jun 16, 2014
    brenda and Valentijn like this.
  18. Mij

    Mij Senior Member

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    @Dster reacting badly? :confused:
     
  19. A.B.

    A.B. Senior Member

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    The question is whether you have been cured of ME/CFS, and whether you even had it or not. You mentioned being able to work full time. I find this statement conflicts with a diagnosis of ME/CFS. You'll find it difficult to convince an educated patient that you had ME/CFS without objective improvement on previously abnormal lab tests.
     
    brenda, Valentijn and Sushi like this.
  20. Mij

    Mij Senior Member

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    I'm rereading your posts and it seems to me that you use a language similar to these types of psychological therapies. Kind of like blame the sick person if they don't believe or get well after therapy. Very defensive imo
     
    Valentijn likes this.

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