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Harm from GET and CBT

Discussion in 'General ME/CFS News' started by Andrew, Dec 9, 2011.

  1. Andrew

    Andrew Senior Member

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    aimossy, ahimsa, Min and 2 others like this.
  2. Esther12

    Esther12 Senior Member

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    General news, or latest research?

    Looks good, thanks Andrew.
     
  3. OverTheHills

    OverTheHills

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    Well big thanks to one of our very own for publishing this excellent scholarly review. What an acheivement!

    :balloons::thumbsup::thumbsup::thumbsup::balloons:

    I have been really hoping that someone with enough ability and academic writing skill would publish some of the PACE analysis which I admire in the PACE thread, and here is something perhaps even more useful. Is the iacfsme bulletin listed on ?pubmed ?medline so other researchers can see it. I hope so. How does Tom do it? I have very poor memory now and can only admire.

    Anyway.I expect he's blushing so I'll stop now. OTH

    PS And thanks Andrew for posting it.
     
    justinreilly, Min, Dolphin and 2 others like this.
  4. frenchtulip

    frenchtulip Senior Member

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    Very impressive!

    Tom uses his fine mind and gives so generously of his time to make a difference for our ME/CFS community! Congratulations, Tom! Brilliantly done!
     
    justinreilly, Min and WillowJ like this.
  5. WillowJ

    WillowJ Senior Member

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    yes, indeed! well done to our Tom, who does generously give his time and talents to help our community!
     
  6. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    This is so great! Thank you Tom! We really need 'scholarly articles' especially topic review articles on ME. Wessely and co. especially dominate this area and it is critical for us because this is the info that gets transmitted to doctors (and the general public via repetition on Wikipedia). If anyone wants to try this type of thing and try to get it published, please do! It is very helpful for us.
     
  7. Battery Muncher

    Battery Muncher Senior Member

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    Great work! Thank you, Tom!
     
  8. LBS

    LBS Senior Member

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    Nicely done. This is what we need, a piling on of better evidence and analysis as to why the "evidence" supporting these harmful treatments isn't sound.
     
  9. alex3619

    alex3619 Senior Member

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    I still haven't read this with the attention it deserves, but my casual reading indicates an important step in this paper is specific recommendations on how to fix the issues raised. There are lots of critical papers or commentaries, but very few that make recommendations on how to fix things. Of course those with vested interests in CBT/GET might not want to read any of it, and will probably ignore the advice, but they are not the primary target audience I wouldnt think. Bye, Alex
     
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  10. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I can provide a modest monetary stipend as a small thank you for such work if anyone is studly enuf to draft and get published a good article like this or the Twisk & Maes articles.

     
    Snow Leopard and Dolphin like this.
  11. oceanblue

    oceanblue Senior Member

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    A really thoughtful & incisive piece showing why and how harms should be reported on the same basis as any therapeutic gains. If researchers take up these recommendations we'd get much more reliable data on the true safety of treatments like CBT.

    I also think it's a really important article with implications for all non-pharmacalogical research, not just CBT/GET for CFS.

    Great work by Tom Kindlon.
     
    Enid, WillowJ and Dolphin like this.
  12. taniaaust1

    taniaaust1 Senior Member

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    thanks. I put that reference at the world wide wikipedia to support under GET "Surveys conducted on behalf of patient organizations commonly report adverse effects."

    (at wiki at the end of that quote which are supposed to reference it, I was surprised to noticed there are references which linked to Wessely stuff which I dont understand that he would be actually supporting adverse effects coming from GET. Anything coming from him wouldnt be truely referencing the statement unless he's using it in a negative kind of way).

    Shouldnt references at the end of that statement be properly supporting the statement being made but coming from the patient orgs themselves seeing they were the ones being refered to? (another way the wikipedia is being used in a biased way). Maybe someone has the time and energy to check those links and see if they do support properly what they are supposed to be refering.

    I wonder if they will think up some reason to remove Tom Kindlon's reference. Im waiting to see.
     
    Dolphin likes this.
  13. Dolphin

    Dolphin Senior Member

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    Good.
    Probably best to edit it and put the reference with the link i.e.
     
  14. Sean

    Sean Senior Member

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    Let's play 'predict the excuses they will use to remove the reference'.

    I'll start with:

    Author has no track record, and is also a patient and hence is clearly biased beyond all hope.

    It is only one paper.

    It is not published in a high impact journal.And who the f..k are the IACFS/ME anyway?

    We already know that all patients are whinging, delusional, dishonest, and possibly violent nutters.
     
  15. Dolphin

    Dolphin Senior Member

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    I see it's gone now. :(
    Did anyone get a chance to write the full reference before this was done? Was a reason given?
     
  16. Carrigon

    Carrigon Senior Member

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    Apparently, the Mayo Clinic has now adopted GET and CBT.
    http://chronicfatigue.about.com/b/2...fatigue-syndrome-mayo-clinic-goes-british.htm
    I feel like we're being witch hunted. There is no amount of this fake therapy that will ever help my symptoms. Can it fix POTS, IBS, Hashimotos, and the million other things I've got? What about the high white cell count and high viral titers? I'm beyond upset. I'm so physically ill right now that I can't even get my snail mail. And there is no amount of GET that is going to fix that.
     
    justinreilly likes this.
  17. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    I sure hope people will ignore all that stuff here at that hosp. Bizarre.
     
  18. Sean

    Sean Senior Member

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    From the Wikipedia talk page for CFS:

    One down, three to go.
     
  19. Dolphin

    Dolphin Senior Member

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    The editorial board is at: http://www.iacfs.net/BULLETINFALL2011/tabid/499/Default.aspx

    The editor is Fred Friedberg, a psychologist who uses CBT for CFS i.e. this isn't the sort of article he would write.

    Articles are peer-reviewed.
     
  20. alex3619

    alex3619 Senior Member

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    Tom Kindlon asked me to post this for him.

     
    justinreilly likes this.

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