August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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Happy New Year!

Discussion in 'Action Alerts and Advocacy' started by Kati, Jan 1, 2013.

  1. Kati

    Kati Patient in training

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    I am starting this new thread because I am surprised that no one else started one on the new year.
    In some ways, I totally understand, I am personally not in party mode as this illness takes bigger grips in my body. And I will only be happier when it's all over.

    However New Years always sparks reflection on what I want my life to be like, what I want to change or what I want to do better.

    I am thinking that for those so inclined, it would be a great exercise to look for strategies for the next year to incite social change and encourage government action.

    Where do we want to be in 3 months time? What could we do for May 12th to be more visible? What should our next campaign be all about? How can we fundraise to get research funding to our experts?
     
    Enid likes this.
  2. adreno

    adreno PR activist

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    Happy New Year!

    Personally, New Year is just another day for me, and I don't make any plans I couldn't make on any other day.
     
  3. Kati

    Kati Patient in training

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    Hi Adreno, my thought was more towards advocacy goals for our community
     
  4. Nielk

    Nielk

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  5. Esther12

    Esther12

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    I was too hungover to start a thread, following my wild debauchery. We stole a cop car, loaded huge speakers on to the roof, and then formed a convoy of ravers on the M25. We were driving around London so fast that a vortex appeared and sucked Buckingham Palace off in to space, with the Queen shaking her little fist at us as she flew past. Ah well, you're only young once.
     
    Clodomir, Merry, MishMash and 3 others like this.
  6. Ember

    Ember Senior Member

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    Here's an idea to consider: Small Change to Change ME - Let's do it for ME! - ldifme

    The Canadian government will apparently save $11 million/year by stopping the production of pennies on February 4th. Perhaps we could appeal to have that saving on small change passed our way.
    2013 pennies from heaven?
     
  7. peggy-sue

    peggy-sue

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    Scotland
    I have often thought that the proper sort of support we need could be delivered by an organisation similar to that of MacMillan or Marie Curie cancer care organisations.

    Nice, well-educated, sympathetic nurses to do home visits and give you all the appropriate advice and care and equipment; somebody who can deal with all the benefits and make sure you get what is due, without you having to go into it all and try to work out the pitfalls of legalese and excluding loopholes and crashing badly after trying to read one paragraph of that tripe.
     
  8. MishMash

    MishMash

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    Georgia
    Yeah, baby!

    [​IMG]
     
  9. Enid

    Enid Senior Member

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    Late catching up - a permanent problem - but Happy New Year Kati.
     

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