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Hair loss and CFS? Help

Discussion in 'General Symptoms' started by trev343, Apr 10, 2014.

  1. trev343

    trev343

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    Wilmington, North Carolina
    My hair loss started right as my CFS symptoms started last October. I was found to be hypothyroid and anemic. Both are now perfectly in range and I don't feel any better....

    Does hairloss exclude CFS? (i'm 23 btw)

    Thoughs and Ideas?
     
  2. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    Still could be hormones out of whack. I have serious thinning in the front but I'm post menopausal.
     
  3. Jon_Tradicionali

    Jon_Tradicionali Senior Member

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    Zogor-Ndreaj, Shkodër, Albania

    Hair loss I've found occurs LESS in people with CFS from the people that I know personally.

    Although for a few years now I've been obsessed with my hair thinking it's falling off too. ( I'm 23 as well) . Something that helped me since a month ago is showering with water only, no shampoos or anything.

    Another option is to lather your head with olive oil. Will help.

    You'll see the difference...
     
    Last edited: Apr 11, 2014
  4. Martial

    Martial Senior Member

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    Have you gotten your other vitamin and mineral levels checked? Low b12 can cause hair loss most predominantly. There are also multiple underlying infections that can cause it too..

    Lyme caused my hair to come out in clumps, though not in a male pattern baldness way.. I am 24 and still have a good head of hair, it eventually grew back but you need to treat the underlying issues.

    Anemia can definitely cause hairloss too, as well as telogen effluvium from the stress on the body. THis is when roughly 70% of hairs fall out of the telogen cycle phase of growth pre maturely, usually due to severe illness or other stress on the body. I know a women who contracted lymphoma cancer and the chemo stress made her blonde hair and eyebrows grow back grey. Its treatable unless there is a genetic pre disposition of balding though. Male pattern baldness is a very slow and drawn out process for the most part though. If that was an issue for you then you would be developing a deep v taper to the forehead, and gradual thinning in the crown.

    Have you checked for underlying infections yet? The fact that you went anemic and hypo thyroid shows your body was reacting to some kind of pathogen to trigger it. The body will actually make us anemic to starve off infections from iron supply, hypo thyroid with chronic illness though I don't really know the full mechanism behind it.

    I wouldn't worry about it it will grow back, do get your vitamin and mineral levels tested though, especially b12 and follow up with looking for any infections that could be causing you to be sick in the first place.
     
    merylg and Valentijn like this.
  5. justy

    justy Senior Member

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    I would suggest the most likely answer is that your thyroid is being undertreated, or treated with the wrong sort of medication. Do you feel well now that your thyroid bloods are in range? are your symptoms of hypothyroid all gone?

    Many people are told their bloods are 'normal' when they still have symptoms, which means your bloods are not 'optimal'.

    Just an idea, and the most simple one to come to mind. This under dosing or lack of optimum health in people being treated for Hypo is very common and well documented. Have a look here:

    http://www.stopthethyroidmadness.com/

    All the best,
    Justy
     
  6. saint

    saint Senior Member

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    I am much older but experienced hair loss, and I had a beautiful head of hair. I went to dermatologist who gave me ketacozanole cream *antifungal" which I couldn't even get into my scalp. Researched & found there are fungi which live on scalp, which tea tree oil is supposed to help. Been using that, along with hair loss shampoo & vitamins. Found hair loss associated with systemic candida (convinced dr. to give flucozanole) as well as leaky gut (taking culterelle, BioKult, vit. A, zinc, Kolorex to help heal. Don't know if any of that will help, but I know I've learned from others. Vinegar rinse supposed to help...
     
  7. Hip

    Hip Senior Member

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    You'd want to find out the exact cause of the hair loss. Androgenetic alopecia and alopecia areata should be considered:

    If high levels of the hormone dihydrotestosterone (DHT) are causing your hair loss, then the following supplements are very effective in reducing DHT levels: saw palmetto herb extract, beta sitosterol, astaxanthin, gamma linolenic acid.

    Topical minoxidil works very well for many people.

    You might want to use minoxidil alongside the DHT reducing supplements. If they work for you, you should see new hair regrowth after around 6 weeks.

    I would stay clear of finasteride. It can cause permanent loss of libido.


    HIgh levels of TNF-alpha have been linked to alopecia areata type hair loss. A very potent inhibitor of TNF-alpha is the herb cat's claw.
     
    Last edited: Apr 11, 2014
  8. trev343

    trev343

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    Hey guys, thanks a lot for your replies. To be honest, the purpose of this post was to hope that hypothyroidism and anemia are causing my symptoms... and NOT the dreaded CFS.. tbh I could care less about hair loss.. I just wanted to wake up with energy, mental clarity and happiness again....

    I started T3 only about 4 weeks ago in order to clear my untreated RT3. The muscle soreness left after about two weeks.
    This is where it gets crazy... about 2.5 weeks into it I felt a little better but not great... got my 23andme results and saw that I might have ammonia problems... took activated charcoal to clear ammonia and I felt almost completely normal for 5-6 days!!!! It was amazing.. but its been a week since I have felt that way.. for some reason I have come back down to my original state.... no matter what ammonia clearing supplements I take... frustrating... ;(

    @Hip @saint @justy @Martial @minkeygirl @Jon_Tradicionali
     
    merylg and justy like this.
  9. hanhanhannah11

    hanhanhannah11

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    Hey!

    So I'm 19 and I've always had the thickest head of hair, but over the last few months it has been falling out from the root and snapping at the ends. Honestly, it scares me so much how much I loose daily. I straighten my hair to keep it manageable but when I noticed it was falling out I stopped (getting used to my natural hair after having it lovely and sleek for over ten years was a challenge!) I switched shampoos and conditioners to all natural brands and went to the doctor but was told it was 'just stress' :/

    I don't really know wtf to do from this point onward really. I am going to be keeping an eye on this post to stalk out all the advice!

    Hannah xo
     
  10. trev343

    trev343

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    guys im not trying to stop my hair loss... I just want to know if its a CFS symptom?
     
  11. Hip

    Hip Senior Member

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    I should add that
    You might want to check through these lists of diseases that can cause symptoms very similar to ME/CFS:
    Chronic Fatigue Syndrome Diagnosis
    Diseases similar to ME/CFS

    Check on Google to see if hair loss is a symptom of each of these diseases. Then if you find a disease similar to ME/CFS in which hair loss tends to occur, then that might be what you have.
     
  12. TigerLilea

    TigerLilea Senior Member

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    Anemia and hair loss go hand-in-hand. Make sure that your ferritin levels are optimal, not just slightly above the range for anemia.
     
  13. trev343

    trev343

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    @TigerLilea my anemia was mild but my ferritin was very low.. a 5.... got iron infusion and I can only get it up to 22... thoughts?

    thanks for any help guys <3
     

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