SA - I get that you are infuriated by the terminology problem, but I think you're fighting that particular battle in the wrong place. Handing them a factsheet which tells them almost nothing about your medical condition but suddenly throws an argument about terminology in their face is just going to put doctors off. They will use the term they have been taught to use, and you need to work with them rather than against them. I wouldn't personally go any further than, "So you have CFS?" "ME, yes," and then leave the rest up to them. The important thing is to suss out how good they are at treating ME patients, to work with them if they are good, and to move quietly on to a different doctor if they are bad. Putting their backs up unnecessarily will not help anything at all, and will reinforce any preconceptions that ME patients are neurotic. If you want to argue about terminology, I suggest you form a campaign about it, rather than trying to make this part of your medical care. The factsheet you hand your doctors should discuss your actual medical condition, e.g. OI, need to lie down, dodgy heart rate, IBS, whatever applies to you.