Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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Had a SKYPE consultation with Dr Paul Cheney last night

Discussion in 'ME/CFS Doctors' started by keenly, Apr 6, 2017.

  1. Jenny

    Jenny Senior Member

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    So what evidence does he have that this works?
     
    merylg likes this.
  2. Basilico

    Basilico Florida

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    @Stretched , I found a few almost full bottles of Yasko's multivitamin and Organ support from 2 years ago in the back of my supplement cabinet. I thought, might as well take these now...Opened them up and there were indeed blackened and messed up - have never seen this with other old supplements. What the heck is this about?
     
  3. Kati

    Kati Patient in training

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    What's the expiration date on the bottle?
     
  4. Basilico

    Basilico Florida

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    From what I was reading on the other Cheney thread, Cheney only recommends the nocturnal low dose oxygen for patients who have specific echocardiogram results. There is also some debate on whether this is helpful or not. In any event, this seems like a band-aid to address symptoms rather than an actual cure.

    http://forums.phoenixrising.me/inde...se-oxygen-therapy-at-night.50360/#post-832119

    As for nanotechnology fixing CFS...I'll believe it when I see it.

    This really feels like grasping at straws. Another specialist happy to charge an arm and a leg without concrete treatment options. The only expert I really have confidence in at this point is Ron Davis.
     
  5. Basilico

    Basilico Florida

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    It was past expiration, don't remember how much (1 year?). Since I am habitually buying supplements and then abandoning them when they don't work, I have lots of old stuff to toss on an ongoing basis. Have never seen this with other expired stuff.
     
    xrayspex likes this.
  6. caledonia

    caledonia

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    I disagree. Here is my take on why methylation supplements may be helpful.

    Besides genetics, you also have to consider epigenetics. The epigenetic factors which negatively affect the methylation cycle are mercury and lead. In the case of toxins, the first line of defense is to remove the toxins. The other option is to increase the co-factors of the pathway. The fact that some people got a lot better from methylation proves that you may be able to increase the co-factors enough to compensate for the toxins.

    Then there are a lot of complicated variables and factors as to why taking methylation supplements wouldn't work, such as mercury also inhibits many other enzymes and pathways in the body, and fixing one pathway (even though it's a major pathway) may not be sufficient for everyone.

    In general, after much research and experimentation, I think a better approach is testing for metals and chelating them out, if present. I suggest only using the Cutler frequent dose chelation protocol as the safest, most effective method.
     
    musicfan50 likes this.
  7. CCC

    CCC Senior Member

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  8. kangaSue

    kangaSue Senior Member

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  9. keenly

    keenly Senior Member

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    The risk IS YOURS.

    MAY help.

    CLOSE THREAD PLEASE MODS.
     
  10. PatJ

    PatJ Forum Support Assistant

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    It looks like this is the NanoVi company. They don't provide pricing so I've emailed to find out.
     
  11. Jenny

    Jenny Senior Member

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    Yes of course it is. I'm just interested to know of any research that provides any evidence that this may be helpful. I would want to know this about any potential treatment. And if someone as experienced as Cheney is saying that something could help he may well have solid evidence.
     
  12. keenly

    keenly Senior Member

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    Cheney is still looking into it. I actually want this thread closed, I should not have made it. Thought I was helping.

    The best bet would be to have your oxygen saturation levels measured.
    I am looking into this now. My area actually has a team to do this. Now I have to get referred.

    God Bless.
     
  13. PatJ

    PatJ Forum Support Assistant

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    You are helping by providing information to interested people. When you present the possibility of treatment to people hungry for any treatment at all, you are bound to receive requests for more details.
     
    Last edited: Apr 8, 2017
  14. Jenny

    Jenny Senior Member

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    Sounds interesting - let us know what your results are. I'm not sure why you want the thread closed - we just want more details.
     
    PatJ likes this.
  15. PatJ

    PatJ Forum Support Assistant

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    I received a very quick and professional response from the company that makes the NanoVi. The email contains a statement that the information is confidential so I can't disclose the prices they quoted but I can tell you that the devices are certainly not low cost and I don't think the base model is even close to affordable for the average person (at the moment, maybe prices will drop in the future).

    Anyone interested in giving it a try may be able to find a treatment center that uses the technology.
     
    Binkie4 likes this.
  16. Johnskip

    Johnskip Senior Member

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    how do you get your oxygen saturation levels tested I know one thing on exertion they can't be normal I'm out of breath easy and it feels oxygen is not getting to my brain properly I'm an athlete trying to get back to exertion
     
  17. keenly

    keenly Senior Member

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    I know how much they cost, TOO MUCH!!!!!!!!!!!!!

    They MAY be helpful to some, with low dose oxygen.

    Just an option. I can not afford one.
     
    PatJ likes this.
  18. Joh

    Joh Inactivist

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    There's an article on Cheney's website with some information: http://cheneyinstitute.com/2017/01/supplydemand-paradigm-used-cfs/
     
    Last edited: Apr 8, 2017
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  19. xrayspex

    xrayspex Senior Member

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    If you can't/don't want to spend money on this I still think his idea of rebreathing is a good "poor man's" treatment and something we can do for ourselves, or square breathing good too--but will be intrigued to hear how this new thang works out for some of y'all

    http://www.prohealth.com/library/showarticle.cfm?libid=8079

    Here is how it works:

    1) Inhale through your nose for 4 seconds

    2) Hold your breath for 7 seconds

    3) Exhale through tightly pursed lips for 8 seconds, creating "back pressure" (you should be able to hear the air being forced out of your mouth as you do this.)

    (they go onto to talk about ayurvedic and kenyan runners etc)

    http://www.prohealth.com/library/showarticle.cfm?libid=8812
     
    Last edited: Apr 8, 2017
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  20. Oberon

    Oberon Senior Member

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    To this day my biggest regret in my life is pursuing Methylation therapy. I made some stupid decisions tried larger doses and took potassium as protocols on this forum recommend and it placed me in a position where I am significantly worse off. I've developed dysphagia, gastroparesis, histamine issues, stiff tingling muscles, food sensitivities, and my activity scale went from an 8 to a 5/6 on the activity scale. Probably other things I'm missing too.

    It's easy with CFS to act out of desperation and read a case study or two on the internet and hope it works for you but there are risks. I think the Methylation forum should have a stickied thread of negative experiences so people take more of a proceed with caution approach. It's very easy to be skewed by the vocal opinion of others on the pro side there.
     
    pibee, TrixieStix, merylg and 7 others like this.

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