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Patient Experience: "What Bronllys taught me about pacing."
In 2012, Maya, who had tried to cope with ME/CFS on her own for many years, attended a pain management centre in Wales, U.K., and is now able to achieve more through pacing and acceptance, than she had been able to before the course...
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Gut poll

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by cigana, Jul 1, 2012.

?

Were gut symptoms your first symptom?

  1. Yes, they came before most of my other symptoms

    42.9%
  2. They came at around the same time as my other symptoms

    25.7%
  3. They came after my other syptoms

    28.6%
  4. I don't have any gut symptoms

    2.9%
  1. cigana

    cigana Senior Member

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    I'm interested in how much the gut originally contributes to the pathogenesis of this disease
    MeSci likes this.
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Thing is, no gut symptoms doesn't mean no gut problems. :confused: I had to check no symptoms but good gut tests show a lot of gut problems. You can have dysbiosis, infections etc. without symptoms. Who knows how long the problems have been there--I wouldn't have known about them without testing.

    Sushi
    MeSci and Enid like this.
  3. Aileen

    Aileen Senior Member

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    Canada
    Well now, I'm not sure how to answer this. The gut problems I've had post-illness came on after other symptoms however, I have had a chronic constipation problem since infancy. The type of gut issues just changed after I got M.E.
  4. Nielk

    Nielk

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    I would think though that most people who would be attracted to this poll are people who have problems with this issue.
    Hanna likes this.
  5. cigana

    cigana Senior Member

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    I agree, it's the problem with all polls on this site, but at least we get an idea of what percentage had them as their first symptom (as opposed to later on).
  6. cigana

    cigana Senior Member

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    Hi Aileen, I would say that your gut symptom came first, in that case, since I would class chronic constipation as a symptom for sure. CHeers.
  7. cigana

    cigana Senior Member

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    Yes, interesting isn't it! I often wonder if dysbiosis is the single unifying factor in all of us (not saying it is definitely the cause). A prominent CFS doctor told me virtually all of his patients had gut symptoms first.
  8. Enid

    Enid Senior Member

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    Must add that although I've polled "after" I should mention that any problem only really became noticeable then - vertigos came sometime before what seemed like motility issues.
  9. Sparrow

    Sparrow Senior Member

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    I had no sign at all of gut problems before that initial sudden post-viral drop.

    But they definitely appeared in force before this most recent, more gradual plummet.
  10. Patrick*

    Patrick* Formerly PWCalvin

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    California
    Mine came on with all my other symptoms during the initial post viral drop, but they went away when I switched to a paleo-type diet. That's not to say they won't return, but they're gone for now.
  11. mellster

    mellster Marco

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    San Francisco
    I certainly had gut symptoms first, for one and a half years.
  12. MeSci

    MeSci Activity level: 6

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    Cornwall, UK
    I'd like to see more responses to this so am bumping it up.
  13. MeSci

    MeSci Activity level: 6

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    Cornwall, UK
    What about your other symptoms - have they improved too?
  14. Patrick*

    Patrick* Formerly PWCalvin

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    California
    My other symptoms have improved too, but it's impossible to tell how much of that is due to diet, as opposed to supplements, Rx's, time, etc.
    MeSci likes this.

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