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Gulf War Syndrome, 8 out of 11 victims tested have incredibly rare pituitary disease

Discussion in 'General ME/CFS News' started by SilverbladeTE, Jul 14, 2011.

  1. SilverbladeTE

    SilverbladeTE Senior Member

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    http://www.veteransnewsnow.com/2011/07/12/uk-researchers-link-rare-condition-to-gulf-war-veterans/

    1) As I've said before, I , liek many with M.E. have very low testosterone (basiclaly zero in my case), because the pituitary gland no longer secretes a controlling horomone that regulates testosterone produciton from the testes and/or adrenals
    My, isn't that a coincidence with Gulf War Syndrome?

    2) As noted before, Uk medicla establishment seems ot have a secret moratorium banning follow up MRI/SPECT scans of ME patients
    despite visible malformation of my pituitary gland etc, they have refused ot do follow up MRI/SPECT scans as were originally suggested (presumably becuase they got slapped down with the ban on such)

    3) VACCINES linked to the Gulf War Syndrome victims, again

    4) Think ME patients should get checked for this?
     
  2. Enid

    Enid Senior Member

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    Thanks Silverblade - it is good to see research here for a change and for Gulf War Vets - like ME the condition sending the medical establishment into years of denial. ME neuroendocrine too so looks like some overlap. Am sure the scientists here will explain more. (My problems diagnosed adrenals and thyroid only - doesn't pituitary control though).
     
  3. Nielk

    Nielk

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    I'm not a scientist but I know how to count.
    20 YEARS FOR THEM TO FINALLY ADDRESS THIS?
     
  4. In Vitro Infidelium

    In Vitro Infidelium Guest

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    Media release seems to refer to this: http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2265.2011.04025.x/references .It's a case series study so it may not say anything abour 'gulf war syndrome' in general - just that there are a number of veterans with a rare (very rare in men ?) pituitary condition which potentially produces the symptoms defining the 'case' illness presentations meaning that case = symptoms = case. It'll be interesting to see what the researchers have hypothesised.

    IVI
     
  5. Carrigon

    Carrigon Senior Member

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    I think the vaccines played a role, but I also think it was aspartame poisoning. They were drinking aspartame drinks that were left out in the heat over there. Aspartame can and does damage the pituitary gland. And when you couple a systemic poison like aspartame with over vaccination, that's what you get, GWS or CFIDS/ME.
     
  6. taniaaust1

    taniaaust1

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    Very interesting.... maybe most of us have that same thing. Maybe for whatever reason we have over stimulated immune system which has caused pituitary problems? my hormones are so stuffed.

    I wonder how they test for that problem?
     
  7. taniaaust1

    taniaaust1

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    I was just researching to find the answer to my question... here's what wikipedia says on Autoimmune Hypophysitis and diagnoses.

    and the Pathophysiology

    So next question is when will someone do a study on this and ME people?
     
  8. Grape Funk

    Grape Funk Senior Member

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    Silver--

    The first thing my doctor said to me when i got my blood panel back was extremely low testosterone for my age(i'm a male). Is there anything you do for your low testosterone that helps?

    Carrigon--

    The first time in my life i have ever used aspartame on a regular/daily basis was when i contracted ME. I have always wondered if aspartame has had anything to do with the disease as i retrace the becoming of it all.
     
  9. taniaaust1

    taniaaust1

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    Grape.. we are usually given testosterone for low testosterone. (Im female and was given a testosterone implant for my low testosterone.. males are usually given testosterone too). Unfortunately in ME, testosterone seems to give many of us females side effects thou the guys Ive heard having it (2 guys) seem to be helped by it.
    ........

    Ive been trying to research that pituatory disease further and its got real confusing as Johns Hopkins says completely different things to what the wikipedia says. eg Johns Hopkins says its diagnosed by a MRI of pituatory gland etc

    Johns Hopkins mentions far more common in females. http://autoimmune.pathology.jhmi.edu/diseases.cfm?systemID=3&diseaseID=65

    Ive got low cortisol, low testosterone and also an abnormality with my FSH and LH.
     
  10. SilverbladeTE

    SilverbladeTE Senior Member

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    I get a Nebido testosterone injection once per 3 months, hurts like a son of a bitch afterwards :p (well when you sit on it accidentally as it's very swollen/brusied for day afterwards, lol, as the "base" for the injection is castor oil, very thick)

    it stops the feeling of "having insides/blood/energy sucked out by a vacuum cleaner", you know? which is one of the most horrible aspects of this damn illness, so it's well worth it, plus some other issues. :D
    "Fatigue" my ass, it's more like being vampirized by a f'ing Dyson hoover! :D
    Doesn't stop the OTHER types of "fatigues" ME causes (several types up I notice, post exhertional, constant, and gross drop off in ability/constituion once excercise begins)


    Aspartame was not around to cause all the cases of ME before 1980s, so that is NOT a possibility for those cases (aspartame was not much used in stuff before about 1985 or so iirc? USA's FDA approval date, and actual USE dates in products *world wide*, are two different things)
    it may have an impact on some folks, as who knows, anything is possible *shrug*.
    But I'd rather think that since the breakdown chemicals of aspartame include, iirc, methanol (wood alcohol), it would have bad effect on anyone with ME anway (but the amounts are incredibly tiny so you'd probably need to over indulge)

    So it should most likely be on a "things ot avoid taking too much of" list. Hell I've seen idiots drink only soft drinks all day since I was a kid, sugar or aspartame, doing that much stuff simply cannot be good for ya, that's common sense! You can overdose even on coffee you know (caffeine), just have ot be an idiot or have issues to do that as it's plain silly.
    In fact probably the issue is more ALL the combined crap we pump into our bodies doesn't help anyone, regardless of what illness they have:
    vaccine preservatives/adjunctives and the massive immune system response to them anyway + pesticides in food + lead (not in petrol any more though) + mercury (mostly from amalgams) + various other heavy metals + PCBs and other complex nasty organic poisons + over exposure to radio/magnetic fields and the ilk and so on and so on
    individually maybe not harmful but over all, especially to those who's immune system is out of whack...that's another question.
     
  11. justy

    justy Senior Member

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    It was recently suggested to me by my M.E doctor that i could have mild Sheehans syndrome which is when the pituitary is partially knocked out by a post partum haemorrhage, the symptoms can take many years to develop, especially if mild. I had 2 PPH after the birth of my 1st and 3rd children. My M.E symptoms started 2 years after the birth of my first child, which also coincided with starting a midwifery degree where i was given lots of vaccinations all in one go.

    I hope they do more research into this for the sake of the GWV's and their children and partners. Lets hope Wessley sees this as i understand he has turned his attention on the Gulf war Syndrome sufferers.
     
  12. max

    max *****

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    Wessely has been involved with GWS since the beginning - it is not surprising that GWS is surrounded in a quagmire of confusion and controversy with ex serviceman fighting for recognition.

    It should not be forgotten that no records of individual immunisation details were recorded for the UK soldiers, as for the US army, all of their recorded data was destroyed when they left Iraq.

    Ideal Wessely conditions - maximum 'fog'.

    max
     
  13. SilverbladeTE

    SilverbladeTE Senior Member

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    Yeah, apparently according to Wessely, GWS allegedly started out because servicemen past stories of illness/problems between each other which span into a "disease"...yeah GWS is just a "rumour", you know, "somatization"
    sigh...like a broken record, isn't he? :p
     
  14. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I agree. Wessely is doing all of this on purpose, not out of ignorance. The man is very smart and has been studying all these illnesses for decades.
     
  15. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I too had/have 'girly-man syndrome' (low testosterone:D). I got testosterone gel and another period took clomiphene which is normally a birth control pill or some other female medicine! My internist said it was better because it didn't surpress the natural production of testosterone. Of course, like with most hormones, there is what is officially the normal reference range which you can be in and still need testosterone.
     
  16. ukxmrv

    ukxmrv Senior Member

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    Am I reading the original report correctly

    Should it be antibodies to the hormones we should be checking for?
     
  17. SilverbladeTE

    SilverbladeTE Senior Member

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    they don't know what the specific anitgen IS, if I read correctly hence, alas, it requires either a very dangerous biopsy (base of brain!), or long time diagnosis, many MRIs/blood works etc
     
  18. Tristen

    Tristen Senior Member

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  19. August59

    August59 Daughters High School Graduation

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    My pituitary seems to be shot. Not giving much signal to testosterone production, orexin (hypocretin), Thyroid and Adrenals. I can't say mine was because of aspartame as I drank my fair share, but quit 4 or 5 years ago. No change what so ever for me. I have not had a vaccination in 35 years prior to becoming ill (not even a tetnus booster). But something has gotten my pituitary pretty much dyeing).

    They even think my unilateral sensineural hearing loss that is sporadic is hormone related now! Who the hell knows and who the hell in our government cares??
     
  20. maryb

    maryb iherb code TAK122

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    So is mine - and yes the same feeling here in the UK, they really dont. Daily life is like treading treacle.
     

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