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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Gulf War Illness Research

Discussion in 'Latest ME/CFS Research' started by Frickly, Mar 3, 2010.

  1. Dr. Yes

    Dr. Yes Shame on You

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  2. Esther12

    Esther12 Senior Member

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    Would be big news if confirmed - especially this bit: "They appear loosely linked to at least three different types of agents to which many troops were exposed"

    They sound very certain, but we've had a few things like this before. I guess brain scanning technology is advancing all the time - if there were abnormalities there could well have been technical limitations to our ability to identify them earlier?
  3. Dr. Yes

    Dr. Yes Shame on You

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    There have been a number of valid neuro-imaging studies in the past that documented marked abnormalities in ME/CFS patients vs. healthy controls and vs. patients with clinical depression alone. The most consistent findings in the past, via SPECT or PET scans, were reduced cerebral perfusion to, and reduced glucose metabolism in, certain brain regions. Nobody has bothered to follow up on these studies. Standard MRI scans have not revealed anywhere near as much, and are the main ones that have been focused on for some reason.

    I would HOPE that we can get something approaching this amazingly comprehensive study on GWI done on ME/CFS patients. Perhaps we can convince the same group to test some of us, if nobody else will?
  4. guest

    guest Guest

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    Thanks Dr. Yes, I wasn't aware of the other thread. We would need lots of more studies about the brain, what it does and what it means for certain illnesses like GWS and CFS. I really hope they find the exact cause and a working treatment for it.
  5. Dr. Yes

    Dr. Yes Shame on You

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    Yes, though in order to get the kind of funding (and to generate the research interest) in those far more complicated studies, it would certainly help to demonstrate beyond doubt (even to 'denialists') that there are clear abnormalities observable for all to see in ME/CFS patients' brains. SPECT scans are so easy to do! PET have higher resolution, and are not much more difficult (though patients get a higher dose of radiation :worried:). fMRI and bold MRI are more cutting edge, but they have been done on ME/CFS patients before, with abnormal findings... I can only assume a lack of funding has been the problem.

    Perhaps the Department of Defense will take an interest in us. First time I ever wanted them to take an interest in me...
  6. parvofighter

    parvofighter Senior Member

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    Canada
    More please!

    I know little about this topic, so look forward to learning more. Keep it coming!

    And Dr Yes, be careful what you ask for
    Mwahahaha:Retro smile:

    Parvo
  7. Koan

    Koan Be the change.

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    Can you imagine doing what they did - taking the risks, feeling the fear, enduring the suffering, deprivation and indignities, doing what they felt or were told needed to be done, living with the trauma of all that... then getting sick and being treated like shite! And, most of them were kids.

    Makes this pacifist crazy!
  8. guest

    guest Guest

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    Interesting is that according to a newspaper article the number of soldiers with PTS has never been higher although soldiers were put under more pressure and maybe even toxins in Vietnam and other wars. Moreover in my eyes the number of people with CFS is growing too. I cannot proof this of course but it would be nice to know why that is. Do humans become more susceptible to these illnesses?

    Dr. Yes you are completely right. I'm also hoping that maybe the US military helps funding research. The research regarding GWS made some huge steps forward during the last years. A professor said that they made more progress in this particular year than in the 15 years before.
  9. JillBohr

    JillBohr Senior Member

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    Columbus, OH
    I just want to emphasize here that the rate of autism is double in military members than it is for civilians. Here is a link to a Newsweek article that was published in 2008.
    http://www.usnews.com/articles/news...e-system-to-help-their-autistic-children.html

  10. Koan

    Koan Be the change.

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    Jill,

    Wow, wow, wow!

    I can't express how much I hope current research helps people with Autism. Like most people, I have friends on the spectrum and friends with kids with Autism.

    And, I worked with kids with Autism in my first career. I was taught, and believed, that Autism was caused by cold, distant mothers - "refrigerator mothers". I remember spewing that crap in a meeting with someone during a job interview. It was the accepted "wisdom"; I got the job. I remember it because I still feel bad about it. Thank heaven I worked only with the kids and not with the parents!!! This memory keeps me humble when considering how the psychologizers manage to carry on psychologizing.

    It's terrible that we have such an explosion of this dreadful condition now.

    This new piece of information is so disturbing!
  11. flybro

    flybro Senior Member

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    pluto
    Worrying my mother, myself and my daughters were all born in military hospitals.

    Also most of familiy, many with military service or wives/children off servicemen all have swathes of missing medical notes.

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