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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Gulf War Illness (/CFS): two subgroups in response to exercise challenge?

Discussion in 'Phoenix Rising Articles' started by Mark, Jun 28, 2013.

  1. Heidi


    Also, it is hard to express my irritation with STOPP "Stress Test Occurring Phantom Perception".

    First of all, they operationalized it into "tender point exams." That's all it is. Those are controversial as to what they even represent.

    Maybe in the study it was meant to represent changes in pain threshold. Yeah maybe it does. Maybe it doesn't. But then you call it "Stress Test Occurring Pain Threshold Decrease"--look, it almost spells STOP.

    What the heck is a "phantom perception"? Translation: the observer gets to decide if the subject has "real" pain or not. (Newsflash: the word "pain" means a subjective perception, unless you are a behaviorist/solipsist).

    The observer apparently then gets to decide if the subject has "real" injury (for example, if exercise causes injury to nerves) or not. Instead of, you know, studying the subject to look for injury.

    The term seems to evoke "phantom limb pain."

    Phantom limb pain is pain, not a phantom. The limb is the phantom, not the pain. The pain exists in the nervous system.

    People who, for example, actually have limbs, do not have phantom limb pain, nor phantom pain, they have limb pain.

    You could have "phantom pain" if a disembodied soul had pain. Then you could surmise that "pain" does not "exist in the nervous system" but was instead, for sure, "phantom pain."

  2. Simon


    Monmouth, UK
    Welcome to the forum, Heidi

    I will be blogging on the new Snell paper shortly, which will hopefully help.

    However, the VO2max effect itself is probably of limited value. First, those willing to undertake a double VO2 max test are probably unrepresentative of CFS patients as a whole. And the effect is quite small, so it looks like there is a lot of overlap between healthy controls and CFS patients.

    Wheras the reduced power output, and efficiency at Ventilatory Threshold on Day 2 test might be altogether more important. Still picking my way through a fairly detailed paper so not sure yet.
    SOC, MeSci and Valentijn like this.
  3. SOC

    SOC Senior Member

    I, for one, am eagerly awaiting your blog on this paper. :)
    Simon likes this.
  4. Heidi


    Thanks for the welcome, the clarification, and of course for reporting on these papers.

    I am astonished that the VO2 max thing was not what I thought. Wow. So nothing is ever simple after all... I hope that my surmise/assumption/guess will be true--that some second-day tests are so messed-up that PEM can be characterized from them. And I hope that something simple can be made from that.

    Really appreciate your analyses, Simon.
    Simon likes this.

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