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Guidance for A&E doctors re: ME/CFS (MUS)

Discussion in 'General ME/CFS News' started by Countrygirl, Aug 13, 2017.

  1. Countrygirl

    Countrygirl Senior Member

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    A very good reason for avoiding A&E below.

    Apparently, there is good evidence that CBT/GET is successful with these patients. :bang-head:


    http://www.rcem.ac.uk/docs/RCEM Guidance/Guideline - Frequent Attenders in the ED (Aug 2017).pdf


    The section below is the section for patients.

    http://www.neurosymptoms.org/fatigue/4533053151

    Functional and Dissociative Neurological Symptoms : a patient's guide

    e Syndrome (CFS/ME) (The Facts) by Frankie Campling, Michael Sharpe. Oxford University Press

    there is more information at NHS Direct

    http://www.nhs.uk/Conditions/Chronic-fatigue-syndrome/Pages/Introduction.aspx

    Services for patients with CFS/ME are patchy. However, they may be better than services for people with functional neTiredness is a very common symptom in patients with functional neurological symptoms.


    Often despite many more obvious symptoms, people say that it is the tiredness and fatigue that really holds them back day to day.

    Tiredness in this situation can also be thought of as another symptom related to a problem with nervous system functioning.

    When tiredness like this occurs
    • with no other neurological symptoms
    • for more than 6 months
    • not due to a detectable underlying medical or neurological condition
    then it is called Chronic Fatigue Syndrome / M.E. (CFS/ME)

    CFS/ME has been recognised as a genuine illness by the Chief Medical Officers in England/Wales and Scotland (link)

    This website is not designed to discuss chronic fatigue syndrome / M.E. in detail

    Fatigue may occur as part of anxiety or depression, although its important to say that you don’t need to be anxious or depressed to have persistent and severe fatigue

    However, many of the principles of treating CFS/ME which have been proven to be effective in clinical trials are likely to be effective in patients with functional neurological symptoms

    There are some useful resources for patients with this diagnosis. If you want to try to understand more about this or learn practical ways to manage your fatigue then I can recommend the following book available online:

    Chronic Fatigue neurological symptoms. You may wish to find out from your doctor whether there is a treatment service locally for CFS/ME as this may be a route to treating your other symptoms.
     
  2. trishrhymes

    trishrhymes Moved to s4me.info

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    Aaaaaaargh. Now it's not even fatigue, it's tiredness!

    So ME is now defined as 6 months of feeling tired. I should be so lucky. I can't bear to read any more of this. But thanks for alerting us @Countrygirl . Michael Sharpe gets more brazenly ridiculous every day.

    Heeeelpppp!
     
  3. Countrygirl

    Countrygirl Senior Member

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    :hug:

    I think it is best to die at home than darken the doors of A&E. Their belief system is ridiculous.

    When you compare the above nonsense by the UK medical profession to the Stanford thread.......................well, it makes one cringe with embarrassment for being British.
     
  4. Barry53

    Barry53 Senior Member

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    As my wife said to me just yesterday when we were talking about the medical profession's collective mind set on ME: "You feel like saying to them: 'Shall I just go and die quietly in a corner for you somewhere, so you don't have to bother with me any more!' ."
     
  5. Sean

    Sean Senior Member

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    They are well into shameless bald-faced lies now.

    After three decades of watching these gutless mongrels in action they still take my breath away.
     
  6. hixxy

    hixxy Senior Member

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    I guess I don't have ME then.
     
  7. Tilney

    Tilney

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    If you follow the link @Countrygirl supplied

    The section below is the section for patients.

    http://www.neurosymptoms.org/fatigue/4533053151

    It has a booklet you can download

    http://www.wolfson.qmul.ac.uk/images/pdfs/getset/GET guide booklet version 1 22062010.pdf

    Pg 2
    Warning Graded exercise therapy is a way of helping yourself cope with chronic fatigue syndrome or myalgic encephalomyelitis. Anyone wishing to undertake such therapy should first discuss it with their GP or hospital specialist and continue to consult them while undertaking the programme.

    But if its all in my head - Why do I need to consult my GP or hospital specialist ?
     
  8. alex3619

    alex3619 Senior Member

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    Reason and evidence are not their strong points, we should not expect logical statements from this school of thought. I do realize this was a rhetorical question though.
     

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