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Guardian goes BPS on Fibromyalgia (Lady Gaga)

Discussion in 'Fibromyalgia' started by Demepivo, Oct 2, 2017.

  1. Demepivo

    Demepivo Dolores Abernathy

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    Guardian Science Editor Sarah Bosely has decided to earn the wrath of Fibromyalgia patients by getting psychologist NIck Fallon of Liverpool University to write about Lady Gaga & the illness

    https://www.theguardian.com/science...myalgia-the-pain-behind-lady-gagas-poker-face

    He uses the words "not all in the mind" but like Suzanne O' Sullivan goes onto to show what he really thinks.

    The link goes through to a piece by Daniel Clauw (a chum of Peter White who has endorsed his work)

    Structural & functional!

    How very psychosocial & so Esther Crawley
     
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  2. Demepivo

    Demepivo Dolores Abernathy

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    Invisible Woman likes this.
  3. ChrisD

    ChrisD Senior Member

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    ''It doesn’t mean that the pain is ‘all in your head’, or any less real or debilitating. It simply means that, even when the pain affects the whole of Gaga’s five foot two frame, the mysterious mass occupying the uppermost 6 inches will always play a pivotal role.''

    I've been thinking a lot lately about whether psychology affects other illnesses and diseases like Arthritis, MS etc. in the same way it would Fibromyalgia. I.e. is it entirely normal for a period of stress to exacerbate symptoms in any illness involving pain/fatigue/coordination/inflammation etc. In which case, this needs to be reiterated to quell the kind of ideas we are seeing in this Guardian article.
     
  4. Marco

    Marco Grrrrrrr!

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    Frankly I don't have any real problem with the notion that psychological issues can exacerbate symptoms. I know that psychological/cognitive/emotional stressors can exacerbate my symptoms to the point of PEM and I can think of several plausible mechanisms to account for this. Does this mean that I believe my symptoms are 'psychological'? - not at all.

    If these people believe that the symptoms in 'X' illness have a psychological origin; are exacerbated/perpetuated by psychological issues; can be treated using psychological therapies etc then they need to provide ROBUST evidence using OBJECTIVE measures. If they can then fine - I doubt anyone sensible would complain. Otherwise it's just speculative waffle.
     
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  5. chipmunk1

    chipmunk1 Senior Member

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    the childhood trauma story is an oldie but goodie. I wonder if anyone has ever been cured by these ideas?

    I mean really cured not 'it helped me so much to understand more about myself "cured" '
     
  6. SueJohnPat

    SueJohnPat Sue

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    If I take valtrex 500mg with Celebrex 200 mg twice a day my “ fibromyalgia “ pain gets 90% better. This is a modification of the Pridgen Protochol. I had high igg titer to Epstein Barr virus and pushed my doctor to give me this combination. I am still ill with chronic fatigue syndrome but I am much more active and am able to lead a more active lhappier life. I was / am a pharmacist. Fibromyalgia has distinct physical signs example tender points.

    I believe the psychological aspect is pushed so we can’t get our disability insurance to pay out. Mine refused to pay saying it was “ psychological” which saved them a ton of money, I finally settled for a paltry sum. The ERISA laws are designed to protect insurance companies ex Cigna. The Cigna ceo David Cordani made 42 million last year. It pays to keep us as “ psyche “ patients.

    Prior to this I had to go to pain management and was on fentanyl patches.

    I think fibromyalgia is. ( in my case anyway) a symptom . I still need to take 1-2 tramadol 50mg a day but this is nothing compared to what I went through.

    I had childhood trauma . So what I was 46 and had a great career and was very happily married and had a great life. It is outrageous that this is not being addressed and more real research given to this.
     
  7. chipmunk1

    chipmunk1 Senior Member

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    BPS = British Psych Scam
     
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  8. nettle_tea

    nettle_tea

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    Agreed! And yes, stress is a well known trigger for MS flares.

    I don't doubt that years and years of severe depression/anxiety in my formative years probably did long-term damage to my body. It affected my sleep, diet, exercise habits, and vulnerability to viruses (I always got sick during finals in college). Not to mention the medication side effects. The brain is a part of the body, so there's no clear separation between "mental" and "physical" illness anyway. But none of this means my symptoms are "psychosomatic" - not any more than a heart attack is "psychosomatic" when it is triggered by stress.
     
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  9. Large Donner

    Large Donner Senior Member

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    So basically if you have a brain it will experience things otherwise you would be dead.
     
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  10. MartinDH

    MartinDH Senior Member

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    That is absolute nonsense and shows the arrogance of these psycho folks. He isn't well informed! There is a study (I think from 2013) that shows nerve damages in fibers in the skin. I think it's okay that he thinks that patients with fibro have a sensitisation in the brain. But this is ONLY a theory (the same goes with the "sexual abuse theory" where causality and correlation are messed up) while there is real EVIDENCE for the nerve damages. He talks to the guardian, to the public and should mention this!

    These theories of psychology are often very ridiculous ... when I read those modern theories I find it as funny as reading Freud or C.G.Jung. If you want to be a good scientist in psychiatry you always have to mess up correlation and causality. And then you have to be very creative and BAM: New "evidence" of a psychological illness.
     
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  11. nettle_tea

    nettle_tea

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    Is the CNS sensitization model a psychological model, then? I didn't think it was, but I'm new to the research.
     

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