Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Guardian Article - ME is still woefully misunderstood by our health and welfare systems

Discussion in 'General ME/CFS News' started by Bob, Aug 8, 2013.

  1. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    I can't edit things either, but I thought it was because I had installed a new system. However when I hit edit an option comes up for advanced action. When I hit that I can edit. Let me check by editing this post.

    I can edit when I hit the "more options" button, the second of three at the bottom. I am using the latest version of NoScript, which is why I was not surprised when edit did not appear to work.
     
    Firestormm likes this.
  2. Bob

    Bob

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    England (south coast)
    The Guardian have removed the weblink to the Lightning Process website from the article. It seems that they considered my request very carefully, and they gave me a very considered reason for not removing the reference to LP altogether, which I thought was a fair reason. I also asked them to add an editorial comment to clarify that LP is not a medical treatment, but it seems they failed to consider that specific request. I'm happy enough with the outcome.
     
    rosie26, lastgasp, alex3619 and 6 others like this.
  3. Firestormm

    Firestormm Guest

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    Cornwall England
    Bob nice one (I am crediting you with the positive action) :thumbsup:
     
    Little Bluestem and Bob like this.
  4. Bob

    Bob

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    England (south coast)
    Well, perhaps they received a large number of emails about it, but they responded to me very personally, so I'm happy to accept the credit on this occasion. :)
     
    Firestormm likes this.

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