The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Guardian article: ME affects four times as many women as men. Is that why we’re still disbelieved?

Discussion in 'General ME/CFS News' started by Ysabelle-S, Sep 27, 2016.

  1. Ysabelle-S

    Ysabelle-S Highly Vexatious

    Messages:
    531
    Likes:
    4,146
    Natalie Wright has written an opinion piece for the Guardian:

    https://www.theguardian.com/comment...s-women-men-chronic-fatigue-syndrome#comments

    Includes:

    "Breakthroughs are happening. Researchers at the University of California, San Diego, recently published a paper that analysed blood molecules – known as metabolites – in healthy people and people with ME. They found a clear pattern of abnormalities, or a chemical signature in the patients with ME which could be used in future to diagnose patients. Currently there is no single test that can diagnose the condition and it is partly due to this that there is so much controversy."

    The article mentions the recent PACE problems, and lower down links to: https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/

    I don't know why I can't see the comments (listed as 84). They are supposedly premoderated.

    Actually, have just refreshed the Guardian article and the comment number is gone.
     
    Last edited: Sep 27, 2016
    ahimsa, Yogi, JohnCB and 9 others like this.
  2. worldbackwards

    worldbackwards A unique snowflake

    Messages:
    2,091
    Likes:
    10,354
    Earth
    There are plenty of comments. Don't trouble yourself. :grumpy:
     
  3. A.B.

    A.B. Senior Member

    Messages:
    3,727
    Likes:
    23,035
    Re. those comments, It's sad to see that it's socially fashionable to berate ME/CFS patients that complain about being treated poorly.
     
  4. Ysabelle-S

    Ysabelle-S Highly Vexatious

    Messages:
    531
    Likes:
    4,146
    Do you mean the Guardian article? There's at least one troll commenting on the Stats article from what I recall. And a lot of other comments there too. The Guardian doesn't seem to have any commenting on, but had 84 listed, but not seen, then the number vanished. Article hasn't been up long though.
     
  5. worldbackwards

    worldbackwards A unique snowflake

    Messages:
    2,091
    Likes:
    10,354
    Earth
    I'm seeing comments on The Graun. All a bit "why can't everyone be right?" bollocks.
     
  6. Ysabelle-S

    Ysabelle-S Highly Vexatious

    Messages:
    531
    Likes:
    4,146
    How strange - I can't see any!
     
  7. Valentijn

    Valentijn WE ARE KINA

    Messages:
    14,283
    Likes:
    45,795
    I can't see the comments either. Clicking on the "94 comments" link does absolutely nothing.
     
    Ysabelle-S likes this.
  8. Ysabelle-S

    Ysabelle-S Highly Vexatious

    Messages:
    531
    Likes:
    4,146
    Another person I follow on Twitter has had the same problems, and thinks there are problems on other Guardian articles too.
     
  9. moosie

    moosie

    Messages:
    82
    Likes:
    371
    I can't get comments either . . . odd.
     
    Ysabelle-S likes this.
  10. worldbackwards

    worldbackwards A unique snowflake

    Messages:
    2,091
    Likes:
    10,354
    Earth
    Trust me , you aren't missing much.
     
    L'engle, Mij, Valentijn and 2 others like this.
  11. moosie

    moosie

    Messages:
    82
    Likes:
    371
    I can get them now. The number of comments went down from about 125 (can't remember exactly) to 94 - were they unavailable while they removed some bad ones?
     
  12. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,689
    Likes:
    21,705
    Germany
    Guardian comments are all over the place. Because of the article's focus on sexism, everyone with an axe to grind about gender politics is chiming in, which is an annoying distraction. I usually find with the guardian that ordering the comments by recommended instead of newest makes it slightly less bad if you read from the top, but I think it might take a while for the trolls to sink to the bottom this time.
     
    L'engle, worldbackwards and moosie like this.
  13. Large Donner

    Large Donner Senior Member

    Messages:
    828
    Likes:
    3,662
    Is this the best the Guardian can up with right in the middle of the PACE scandal? There's a spoon fed truth sitting waiting for journalists. Dates, times, court orders, scandal, proven scientific fraud, waste of £5 million of public funds, DWP involvement all there in black and white.

    What the hell is wrong with journalists these days?
     
    Wildcat, soti, Webdog and 2 others like this.
  14. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,689
    Likes:
    21,705
    Germany
    Most popular comment so far with 41 recommendations:

    I thought the article was good, but was interested that the above comment found such a positive reception, and although the sexism points are probably valid, I wonder if focusing them is such a good idea? It could end up becoming a divisive distraction, when we have so many other good arguments these days.
     
    BurnA, Chezboo, Hutan and 4 others like this.
  15. Esther12

    Esther12

    Messages:
    8,454
    Likes:
    28,554
    The author was a patient, and I expect that the problem was more with the editor. They can find these more personal stories less threatening to deal with.
     
  16. Large Donner

    Large Donner Senior Member

    Messages:
    828
    Likes:
    3,662
    Yes I get that but my point was more generalised. There have been a couple of articles in mainstream media in Sweden though already focusing on the PACE trial and that absolute scandal. Yet here right infront of the medias noses there is virtually nothing being said in the media.

    I think this is one area we fall down in on advocacy, we just don't have a press presence being presented from our ME organisations.

    Maybe it is happening behind the scenes and the whole story is about to break massively?

    Maybe!!
     
    Mrs Sowester and TiredSam like this.
  17. worldbackwards

    worldbackwards A unique snowflake

    Messages:
    2,091
    Likes:
    10,354
    Earth
    Yeah, but it's such a quintessential Guardian line that it has a kind of inevitability to it. It's a kind of inverse of the 'meddlesome nanny state' pieces that you get in The Express.
     
    TiredSam likes this.
  18. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    yikes. the comment section is a nightmare. Hope more of us will click through and either comment or upvote the better comments.
     
    TiredSam and Mij like this.
  19. Esther12

    Esther12

    Messages:
    8,454
    Likes:
    28,554
    Actually - just realised I'd missed the paragraph on PACE on my first read through. I'd have liked more on that (of course), but it is in there and fairly summarised. Congrats to the writer for getting anything past the Guardain's editors!
     
    L'engle, moosie, trishrhymes and 4 others like this.
  20. Marco

    Marco Grrrrrrr!

    Messages:
    2,369
    Likes:
    3,146
    Near Cognac, France
    No obvious angle to work in identity politics?
     

See more popular forum discussions.

Share This Page