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Group interventions encouraging CFS patients to increase activity shows modest result

Discussion in 'Latest ME/CFS Research' started by Dolphin, Jan 24, 2010.

  1. Dolphin

    Dolphin Senior Member

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    Published Letter "Group interventions based around encouraging CFS patients to increase activity levels have shown modest results"

    I had a letter published:
    "Group interventions based around encouraging CFS patients to increase activity levels have shown modest results"
    http://iacfsme.org/LinkClick.aspx?link=396&tabid=393
    or
    http://iacfsme.org/Portals/0/pdf/Kindlon Letter - vol17 n3.pdf

    In response to:
    A pilot study of the process of change in a group Chronic Fatigue Syndrome management programme.
    Bulletin of the IACFS/ME. 2009;17(2):53-68

    which might be of interest to some if they want to ever want to quote something in the literature on the issue.
    (Unfortunately letters are restricted to 400 words and 5 references)

    [With the Journal of Chronic Fatigue Syndrome no longer operating, people could consider submitting material they might have submitted to the JoCFS, to the Bulletin of the IACFS/ME. Instructions are at:
    http://iacfsme.org/BulletinArchives/tabid/309/Default.aspx ]
  2. CBS

    CBS Senior Member

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    Western US
    Thanks Tom. Both for the info on getting papers to the IACFS/ME and for a well reasoned paper on GET and CBT.

    Shane
  3. Dolphin

    Dolphin Senior Member

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    Thanks Shane. It was the first letter they had published. It was a pain in that I did a draft (hadn't submitted it) and they changed the rules to 400 words and 5 references. So couldn't make all the points I want to make.
  4. starryeyes

    starryeyes Senior Member

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    Bay Area, California
    That's great you wrote a letter TomK. Group interventions on us is just a tad bit ridiculous! :cool:
  5. :Sign Good one:

    Thanks Tom! A big pat on the back.

    Thank God my doctor mentioned pacing and the Envelope theory to me rather than CBT and GET 6 years ago when I got my first bout of M.E. otherwise I never would have been able to get married. Or would have got married in a wheelchair and would have had to forgo the honeymoon.

    Now there's been a lot more research it has helped me tremendously with my second bout.

    -Rachel xx
  6. Dolphin

    Dolphin Senior Member

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    Thanks teejkay. That's all people get on the public health system in "specialist" ME/CFS clinics in some parts of the UK and in Belgium.

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