1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Group home for ME/CFS

Discussion in 'Lifestyle Management' started by jester, Aug 20, 2012.

  1. jester

    jester

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    warriorseekspeace likes this.
  2. beaker

    beaker CFS/ME 1986

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  3. jester

    jester

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    Beaker, thanks for those links. I hadn't seen those discussions.
  4. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Maybe you would have renters who could do groundskeeping & maintenance as part of their rent.

    Many of us cannot drive any distance or at all. Good public transportation could make a smaller city doable.
  5. madietodd

    madietodd Senior Member

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    The convent idea brought to mind a small bed and breakfast. That might work. I'm trying to think of buildings that have individual bathrooms.

    In my imagination, this works best with a very small group. I'm picturing dividing up the kitchen with other people with specific dietary needs.
    warriorseekspeace likes this.
  6. jester

    jester

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    For example, here's a 6-unit apartment building for sale in Bridgton, Maine, right near where I used to go to summer camp. Each unit has its own bathroom, and could probably be rented out for $500/mo.

    Bridgton is a nice little town near two big lakes, but there's not a lot going on, and not much in the way of medical support, so it might not be suitable for people who need a lot of medical help. On the other hand, real estate and rents are affordable, which is why this 6- unit building is listed at $159,000!

    http://www.realtor.com/realestatean...-St_Bridgton_ME_04009_M41268-71542?source=web

    edit: Bridgton Hospital is just down the road....
  7. taniaaust1

    taniaaust1 Senior Member

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    You could offer a student free board for so many hours of home help per week. (doing dishes, mowing, getting the shopping if anyone was too sick to shop themselves etc).
  8. madietodd

    madietodd Senior Member

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    warriorseekspeace and Nielk like this.
  9. Nielk

    Nielk

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    I love Vermont!
    MEG likes this.
  10. lnester7

    lnester7 Seven

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    I love this project! Just a thought, I live in a small town, away from big city and doctor knowledge and access is very bad. So I think one of the first priority should be CFS related Dr access.
  11. jester

    jester

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    Madie, that's a beautiful house!

    The downside of it is that the cost of the mortgage on $200k, plus the $8k per year taxes, might make rent too expensive for me and others too afford. I would like to try to keep rent no more than $500 per person.

    Another consideration is people who have Section 8 vouchers for housing. My understanding of Section 8 vouchers is that they cannot be used to rent a room in a house, they can be used only to rent a self-contained apartment. So a house that has already been entirely subdivided into self-contained apartments would be preferable for Section 8 folks.

    And lastly, older houses in the VT/NH/ME area are EXTREMELY expensive to heat in winter. They tend to be drafty, with old loose windows, and little or no insulation in walls and ceilings, and it can easily cost $500-$1000 per month for heating oil in winter months.
    MEG likes this.
  12. madietodd

    madietodd Senior Member

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    I should have said that this was just an example.....I'm not ready to buy a place yet. I was just showing my ideas about how to search (hospital, muti-family, airport, distance from big cities, colleges).

    Good point about heat. Blowing insulation into walls isn't too expensive.

    The places I saw that featured apartments sounded like they were already full of renters. I guess from a realtor's POV, fully rented is a + selling point.

    I agree that it would be helpful to find a local doctor who is willing to work with PWCFS; I very much doubt that we would luck into an expert. I expect I would keep going to Florida once a year for my treatment plan.
  13. Hope123

    Hope123 Senior Member

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    Not that I plan on doing something like this anytime since I have family........but I would suggest for those in the US to consider the West coast. I've lived on and visited both coasts and, OK I'm somewhat prejudiced about it, but we don't have the same issues with heat, cold, tornadoes, hurricaines, etc. The main risk here are earthquakes but significant ones are separated by years - decades. Generally, I find people are fairly open-minded, even in some rural areas, and the availability of things like organic produce, clean water, fresh air, natural beauty, etc. are easily found.

    Places like San Fran, LA, San Diego, Portland, Seattle, etc. may seem expensive but once you go out of the city a bit, the property values can be lower, especially with the collapse of the housing market.
  14. August59

    August59 Daughters High School Graduation

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    I little bit of grass would be nice, but just live among the trees!
  15. August59

    August59 Daughters High School Graduation

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  16. MEG

    MEG Senior Member

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    @ Neilk and Maddie..I WAY LOVE VERMONT!!!! AND I LOVE IT SOME MORE!

    Maybe because I lived there for 30 years.

    Why did I leave? I got ME/CFS! The cold, cold winters, and rain and always high humidity forced me to move. So here I am in the Smokey Mountains of NC...it is so like Vermont without the bad weather.

    I loved the VT winters bringing up my family because we ski'd every day all winter, and the NE lakes were perfect for all summer canoeing, kayaking, swimming, hiking and more.

    I got amazing medical treatment at Dartmouth, and you are really just a few hours from Boston.

    Property taxes are high...as in my farmhouse was $500/month in taxes, food is expensive, but boy is it a beautiful state. My soul resides in VT. It always will.

    But if anyone ever started a group home in VT I would go back in a heartbeat...ie: someone else to shovel snow.
    Nielk likes this.
  17. Valentijn

    Valentijn Activity Level: 3

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    Something without stairs would probably work a lot better too :p
  18. Valentijn

    Valentijn Activity Level: 3

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    Based on what I've read, that depends on the local Public Housing Authority, though in the case of disabled people it sounds like it's mandatory to allow it. www.allenshea.com/CIRCL/documents/CAsSec8Prgm.pdf

    Section 8 vouchers can also be used to pay a mortgage.
  19. Vincent

    Vincent Senior Member

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    When I looked into group homes they are all for the mentally retarded of mentally unstable.

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