Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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Green Party (Canada) response to #MillionsMissing email

Discussion in 'Millions Missing Campaign' started by Old Bones, Jun 17, 2016.

  1. Old Bones

    Old Bones Senior Member

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    Just received the following email from Elizabeth May, Green Party leader (and sole Green Party Member of Parliament):

    "Thank you for your email about Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). I find it appalling that in a prosperous country like ours, many chronic diseases afflicting Canadians are still being misdiagnosed or not diagnosed at all. Canadians living with ME/CFS are too often stigmatized and left without the social and economic support they need to meet their unique needs.

    I support your call for stronger research, health, and social infrastructure to support Canadians living with ME/CFS. The fact that ME/CFS is poorly understood contributes to a lack of treatment and care options for those living with the illnesses. Moreover, a general lack of public awareness has contributed to the unfair stigma associated with these conditions, which, in turn, makes it more difficult for people living with ME/CFS to access the accommodation they are entitled to.

    For these reasons, I agree that improved funding and research, health care delivery, and public awareness that respects the realities and needs of Canadians living with ME/CFS is needed.

    I will work with the federal government to see if it can build a framework with the provinces and the medical community to ensure that general practitioners are properly equipped, and that there are enough specialists to provide appropriate treatment to Canadians with ME/CFS.

    With stronger support for improved research, health, and social outcomes, the federal government can ensure that Canadians living with ME/CFS are treated with understanding, justice and equity.

    Thank you again for writing.

    Sincerely,

    Elizabeth May, O.C., M.P.
    Saanich-Gulf Islands
    Leader of the Green Party of Canada"

    Not one of the governing Liberal MP's responded to the #MillionsMissing emails sent from our household. Considering the positive response @Kati received from her opposition MP today, perhaps this is where we should be focusing our advocacy efforts.

     
  2. Kati

    Kati Patient in training

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    My MP said everyone including those with a LIberal MP should go speak with their MP about the current situation. but it shouldn't be a matter of political party, it's about doing the right thing for 411,000 of us.
     
    Justin30, meadowlark, BurnA and 4 others like this.
  3. helen1

    helen1 Senior Member

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    Canada
    Isn't she wonderful that Elizabeth May. Can you tell I'm a fan...
    Now that I'm retired I'll have more time to write letters too. Thanks @Old Bones .
     
    Battery Muncher, BurnA, Kina and 2 others like this.
  4. Skippa

    Skippa Anti-BS

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    Wow... Just wow.

    Brings a tear to my eye.
     
    Comet, Old Bones and BurnA like this.
  5. panckage

    panckage Senior Member

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    Vancouver, BC
    I'm going to play Devils advocate here and say this looks like a form letter where me/CFS could be replaced with any chronic disease. Someone who basically has zero say in the government (only have 1 seat) can promise the moon to everyone. They have no power so they will always blame the government and act like they support everyone's cause. I would ask her what she will do to bring up this issue with the federal government and also ask how can our community help to support her in that quest


    OK I'm done being a negative nancy haha. Great work @Old Bones! I sent out 3 or 4 emails for millions missing but only received an out of office response from a maybe one of those :p. Definitely time for me to follow up as @Kati has done!
     
    Justin30 and perrier like this.
  6. perrier

    perrier Senior Member

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    Thanks Elizabeth May. But my daughter saw a doctor last week, who never heard of CFS! Let alone ME. Yes, it's the truth. She thought it was just fatigue. Young doctor. They do not study this illness in Canada, according to an older doctor I spoke with. Our health care is so frightening.
     
    Justin30, meadowlark and Kati like this.

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