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Great news: IACFS/ME Newsletter makes important Primer announcement

Discussion in 'General ME/CFS News' started by waiting, Aug 21, 2012.

  1. waiting

    waiting Senior Member

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    The August issue of the IACFS/ME newsletter has announced that as a follow-on from the June CFSAC meeting, the National Guideline Clearinghouse (NGC) invited submission of the IACFS/ME Primer and has now accepted it "for inclusion and posting on the NGC website in the fall."

    See the newsletter for details. It has lots of additional interesting and useful information in it.
     
    Bob, WillowJ, CJB and 7 others like this.
  2. Firestormm

    Firestormm

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    Cornwall England
    Thanks for the heads-up Waiting. I have popped the relevant section onto Cort's thread about the Primer vs. Toolkit: http://forums.phoenixrising.me/inde...n-cdc-toolkit-vs-iacfs-me-primer.18617/page-2

    From the August 2012 IACFS/ME Newsletter: http://www.iacfsme.org/NewsletterAugust2012/tabid/512/Default.aspx
     
  3. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    WA, USA
    I'm very pleased about the update (will they include more immune and infection things?) and the government website and (a) and (c), but confused about the utility of (b)? that just sounds like CBT/patient support and not an ME and/or CFS issue? why do we feel a need to coach docs about patient support here?
     
    justinreilly likes this.
  4. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    Great. Last time I checked, the only one up there was the old horrible CDC CME.
     
  5. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    I agree. Who was this "public feedback" on (b) from?

    I think it's pretty clear that recommending exercise for any ME patient other than those only mildly affected is, on balance, detrimental.
     
  6. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA

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