New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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Great ME/CFS & Lyme awareness videos by Ren Gill - must see

Discussion in 'General ME/CFS Discussion' started by Antares in NYC, May 11, 2016.

  1. Antares in NYC

    Antares in NYC Senior Member

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    Hi gang,

    I have not posted here in a while. I'm not doing well. My health continues on its spiral down despite heavy treatment, got horrible news regarding brain lesions observable via SPECT scan, and on top of things I lost my job, which now puts me in a very precarious position while drowning in medical bills. I'm at an all time low, and things keep getting worse.

    Nevertheless, this post is not about me. I wanted to bring attention to the excellent video diaries that UK musician Ren Gill (our very own @trickthefox ) has been posting on YouTube as part of his efforts to educate the public on the awful realities of ME/CFS and Lyme. In these video diaries, Ren is very eloquently saying things that I could sign myself. We need to unite and demand justice, as more and more sick patients are being left to their own devices, while Lyme has become epidemic in North America and Europe, and the number of those afflicted by ME/CFS continues rising without funding, treatment or standard of care.



    Hey, @trickthefox: thanks for what you are doing. I wish I had your courage, but the fear of being rejected in the workforce keeps me anonymous. People can be vicious, and the realities of looking for a job while my body feels like collapsing is just a cruel joke of life. Still, here in the States the job is my lifeline to proper medical care.
    I'm not bedbound, but was at times during my battle with these conditions. Just like you, I have been diagnosed with both ME/CFS and Lyme, and getting desperate that nothing works. Nothing makes a dent.

    Keep fighting the good fight. I appreciate your video diaries and the clarity of your thoughts. I agree it's time to unite and demand answers.
     
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  2. Antares in NYC

    Antares in NYC Senior Member

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    Another great one:

     
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  3. waiting

    waiting Senior Member

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    I'm really sorry to hear that your function is worse -- I hope it is a temporary relapse.

    Thank you for the links. There is a lot going on right now, as you know -- both research and advocacy efforts. Although we needed these efforts 30+ years ago, it's at least some hope that our collective situation may change.
     
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  4. Asa

    Asa Senior Member

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    Antares, for what it's worth, I wish you continued strength and of course healing and peace of mind... Hang in there. Thank you for sharing the videos, and thanks of course too to trickthefox for creating them.
     
    Antares in NYC likes this.
  5. *GG*

    *GG* Senior Member

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    Since he talks politics, here is a source, I am sure you can find a "write up" with more intellect.

    http://humanevents.com/2016/05/11/f...urce=hedaily&utm_medium=email&utm_campaign=nl

    Seems like much more is going on in the USA via Private orgs, and I have more hope in that, than anything dealing with gov't. I mean we have had a generation of suffering in the US waiting for gov't to do more!

    Good luck to all!!

    GG
     
  6. justy

    justy Senior Member

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    Sorry to hear things have been bad for you Antares. Great job Trickthefox!
     
  7. trickthefox

    trickthefox Senior Member

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    Glad you liked the video's guys!
    Keep on keeping on :)
     

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