Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Graun - "My final year at Oxford, when I felt punished for having ME"

Discussion in 'General ME/CFS News' started by worldbackwards, Oct 19, 2016.

  1. worldbackwards

    worldbackwards A unique snowflake

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  2. harveythecat

    harveythecat

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    Ah yes is me :)
     
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  3. AndyPR

    AndyPR Senior Member

    Sorry to hear of the hard time that you had but many thanks for all your efforts in raising the ME profile :)
     
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  4. Effi

    Effi Senior Member

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  5. mermaid

    mermaid Senior Member

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    Excellent article @harveythecat I hope the publicity shames those colleges into changing their system.
     
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  6. Aurator

    Aurator Senior Member

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    There seems to be an assumption on the part of all universities that are prepared to give a year out to sick students that whatever condition the student is suffering from it will be sure to have abated substantially or gone away in a year's time.

    In the case of ME it's quite likely that the illness won't have gone away in a year's time, or even abated, so I don't see the point of offering students with ME a time-limited leave of absence. But this is what all universities almost invariably do.

    I've mentioned elsewhere that schools and employers have the same narrow view of the way illnesses play out, and expect that if they offer someone what they see as an ample six months or a year off, that person is bound to be ready to return to school or work by then, and if he or she is not, then the obstacle is unlikely to be physical ill health, but something psychological - the thinking being that generally only psychological illnesses take longer than this to resolve.

    The reason universities grant extended leave to sick students is presumably to enable them to return and complete their degrees when they are well enough to do so. In the case of ME - a chronic and debilitating illness for which there is no cure and the symptoms of which are exacerbated by any kind of stress - the leave that is granted and the conditions under which students are required to resume their course should be specially tailored to the nature of the illness; that means offering indefinite leave and very accommodating conditions of return.

    Oxford colleges may well pride themselves on their academic rigour, but they're clearly not very enlightened about the nature of one fairly common medical condition. Dominus Illuminatio Mea, their motto says, and it looks like the Lord, or someone, could do with shedding a bit more of his light on them.
     
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  7. harveythecat

    harveythecat

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    @Aurator spot on.

    Oxford refuses to accommodate for those with disabilities. It is extremely rare to, for example, be able to spread out final exams over two years and there are no options to do courses part time. It's completely rigid. If you are unable to physically keep up with an often ridiculously high workload then you shouldn't and don't deserve to be there, is how I was made to feel. It's so ironic as well - I would be being taught about feminism and e.g. the origins of oppressive ideas of hysteria in my really 'left wing college' while being treated as the article describes.
     
  8. Webdog

    Webdog Senior Member

    And then there is the vast pool of students who can't ask for accomodation or don't know what to ask for, because they haven't been diagnosed or have been misdiagnosed.

    Given than roughly 8 out of 9 ME/CFS sufferers remain undiagnosed, I would suggest this pool of students vastly outnumbers the type of student in the article.
     
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  9. TiredSam

    TiredSam The wise nematode hibernates

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    Another great article @harveythecat. Glad to hear your health has improved somewhat, and congratulations on your first - a fine achievement under any circumstances, incredible considering what you've had to go through.
     
  10. harveythecat

    harveythecat

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  11. TigerLilea

    TigerLilea Senior Member

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    Great article, @harveythecat ! I don't understand why in the 21st century the British gov't doesn't have guidelines in place that ALL universities and colleges must adhere to??
     
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  12. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Good job @harveythecat with the article and for putting yourself out there to create awareness.
     
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