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GP required in Newcastle Australia for CFS/ME

Discussion in 'ME/CFS Doctors' started by Lisa2013, Jun 14, 2013.

  1. Lisa2013

    Lisa2013

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    Hi, I'm new to the world of ME/CFS after recently being told by a GP that I may have this.

    For the last 4+years I have suffered from a range of cognitive problems, extreme dizziness when standing/looking up, fatigue, muscle and joint pain, double/blurred vision and more recently I started having migraines. They have now progressed to the point where I experience a massive headache daily which becomes a migraine at least twice a week.

    To get some relief I've been having tests as I was told it would be a hormone problem (I'm 45) and as nothing came up in the results, the GP felt it was likely I had CFS. I then went to an Immunologist and had a range of tests which showed nothing (according to the Immunologist, although she did say I could be in the early stages of Lupus). I must say the Immunologist was just terrible - totally disinterested in providing any kind of help.

    As the migraines are incredibly painful and no one in my family has them I believe they have to be caused by something malfunctioning within the body and I want to get to the bottom of it.

    If anyone in the group can assist with a recommendation for a Newcastle GP I will be very grateful. So far I've had 4 recommendations and each GP that I've contacted has closed their books (without even knowing why I wanted to see them). It's becoming very difficult to get to the bottom of it.

    Many thanks,
    Lisa
  2. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    I don't have any specific doctor recommendations, but many of your symptoms sound like Orthostatic Intolerance. There are two primary forms known about in ME patients - 1) POTS (postural orthostatic tachycardia syndrome) where heart rate rises 30+ beats per minute when standing, and 2) NMH (neurally mediated hypotension) where blood pressure and/or pulse pressure become too low after you've been upright for too long. A Tilt Table Test is used to diagnose them, though a longer one is usually needed for NMH.

    As something that might help in the short term, I have a constant headache which goes away if I take 2-3 grams of fish oil per day. So if you have the same sort of headache I do (presumably inflammatory), fish oil might help. Orthostatic Intolerance can also cause headaches, so laying down more might help.
  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    I cant recall the exact name but the university at newcastle did alot of cfs/me research back in the 1990s. Maybe worth give them a call as many of those researchers were doctors and possibly practising in gp land. it would be worth a shot?
  4. Lisa2013

    Lisa2013

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    Thanks for your replies. I have been taking between 330-660mg of krill oil daily. Would this be as helpful as the fish oil?

    I have also contacted Professor Roberts @ Newcastle University (ME/CFS) & although he could not recommend any GPs, he has offered to send me information regarding tests that would be helpful (info on its way).
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Cool. I would be interested to see what tests he recommends.
    I dont know alot about krill oil I suppose it depends on the epa and dha content comlared to fish oil.
    Valentijn likes this.
  6. merylg

    merylg Senior Member

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    Sydney, NSW, Australia
    Hi Lisa, just wanted to say welcome to PR forums. I hope you can find a Dr near by who can help you.
  7. Valentijn

    Valentijn Activity Level: 3

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    The dose is probably much too small, since it sounds like krill oil isn't much more effective than fish oil, and 2-3 grams of fish oil capsules is pretty typical.
  8. Lisa2013

    Lisa2013

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    Thanks everyone - from tomorrow I'll be taking 2-3 grams of fish oil and it might help make a difference. Still hopeful that someone can suggest a good GP/Doctor in Newcastle as that's my starting point to get to the Specialists worth seeing.
    Valentijn likes this.

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