Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Gordon Medical: Metabolomics in CFS Study to be Published August 31

Discussion in 'General ME/CFS News' started by mango, Aug 22, 2016.

  1. mango

    mango Senior Member

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    http://www.gordonmedical.com/unrave...omics-in-cfs-study-to-be-published-august-31/
     
  2. dreampop

    dreampop Senior Member

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    Anyone know about these guys? Never heard of them, or Eric Gordon. But, that's a pretty extraordinary claim, I would be very pleasantly surprised.
     
  3. taniaaust1

    taniaaust1 Senior Member

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    Ive never heard of these either. It sounds interesting, I wonder if same kind of findings have come up as in other studies.
     
  4. halcyon

    halcyon Senior Member

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    The OMF big data study will be using the same lab (Dr. Naviaux's) as this study for metabolomics work.
     
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  5. Hutan

    Hutan Senior Member

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    I have hope that they have come up with something useful, mostly based on the company they keep.

    Check out this nice summary
    http://me-pedia.org/wiki/Robert_Naviaux
    if you aren't familiar with Robert Naviaux's work and his involvement in the Big Data Project run by Ron Davis.
     
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  6. aimossy

    aimossy Senior Member

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  7. A.B.

    A.B. Senior Member

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    At what point can we say that ME/CFS metabolomics is trendy?

    We've got four different groups doing metabolomics. One from New Zealand whose name escapes me at the moment, the OMF with Davis and Naviaux, Columbia University with Lipkin and Hornig, and now Gordon Medical.

    Where did this sudden interest come from?

    If these groups all come up with similar results it's going to have a large impact.
     
  8. Sidereal

    Sidereal Senior Member

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    Can't wait!
     
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  9. aimossy

    aimossy Senior Member

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    I think it's a hot area of research but not so sure about it being trendy just for ME/CFS right now. The Australia group in Melbourne have been working on it for a few years and so have Lipkin and Hornig through CFI funding for at least 2 years. I think Davis has made it exciting with what he has shared about it with respect to ME/CFS. But maybe it is seeming trendy with people now talking about it so much. @A.B. You might be thinking of Prof Tate in NZ who is also using metabolomics.
     
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  10. aimossy

    aimossy Senior Member

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    Oops not to mention the UK grand challenge plan in omics which is a massive 10k cohort which hopefully happens....
     
  11. halcyon

    halcyon Senior Member

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    I'm not sure if there's ongoing work, but Maureen Hanson also reported on a pilot metabolomics study at Invest in ME this year, where they could identify the ME patients with 100% success.
     
  12. Groggy Doggy

    Groggy Doggy Senior Member

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    OMF/Naviaux/Gordon is the same study

    http://www.openmedicinefoundation.org/expanded-mecfs-metabolomics-study/
     
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  13. A.B.

    A.B. Senior Member

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  14. Sidereal

    Sidereal Senior Member

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  15. Solstice

    Solstice Senior Member

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    Weren't there bio-samples sent to Japan for metabolomics study too?
     
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  16. aimossy

    aimossy Senior Member

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    Thats right! Bateman Horne have just sent samples away to Japan for metabolomics work as well. I forgot about that.
     
    Last edited: Aug 23, 2016
  17. Jill

    Jill Senior Member

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    Fantastic , have been waiting for this ! Also right on the eve in which my partner us being admitted to hospital. It's possibly a waste of time but I think I'm slowly getting the message thru that ME isn't about fatigue and the treatment of exercise is based on rubbish . I really want to send this guy who is clinical director of medicine at middlemore hospital in Auckland to the next conference . Anyone any idea when the next USA one is and if there's an agenda anywhere. Old Ros Vallings isn't really up to it as far as I'm concerned. She wanted 500$ to come to see Al at home. This guy has come for nothing twice. She can't be bothered with the severe. She just gets all the patients and charges like a specialist but has no specialist rights like hospital privileges . It's a scam as far as I see it
     
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  18. Gijs

    Gijs Senior Member

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    Looks really good! I think this will lead to a major breakthrough, if replicated!
     
  19. Ben H

    Ben H OMF Correspondent

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    What @Sidereal said.

    The reason for the interest and metabolomics being 'trendy' per se is due to the technology itself, and the findings that have already been documented (from the London conference) and the upcoming paper.

    Metabolomics can tell us so much, and is on the razor edge of new technology. Combine that with the findings thus far and you have a recipe for interest.

    On a side note, it can get slightly confusing due to the amount of researchers and facilities that are working on this. For more info and list of collaborators working with OMF, this thread can help:

    http://forums.phoenixrising.me/inde...foundation-official-thread-inc-q-and-a.45652/


    B
     
  20. Bob

    Bob

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    Never Give Up, RL_sparky and aimossy like this.

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