Good video of 2 gals discussing CFS/ME impact

[roxie60]

I even laughed with them. So relatable. I wish Google would have let me leave a reply on that video but instead left screaming at the failing technology of today, I never wa allowed to leave an update on the video so those gals have no idea how wonderful I thought of their sharing. Please go and like this video if you agree and let me know if you are able to leave a comment if you do so.

 

[shannah]

So very sad ... the woman on the left Amberlin Wu passed away in October of 2011.

An article on her http://www.mv-voice.com/news/2010/12/02/sick-and-tired-of-chronic-fatigue-syndrome

Dr. Franky Dolan who did this interview is also very ill. He is a tender hearted soul and I'm sure would very much like to hear your appreciation.

He has a number of sites dealing with various issues. Perhaps he can be contacted via one of these.
http://www.invisiblediseases.com/Home.html
http://faefactory.com/Fae_Factory_~...nk_Chic,_Eco_Art_by_Dr_Franky_Dolan/Home.html
You tube channel http://www.youtube.com/user/DrFrankyDolan?feature=watch
He's also on Face Book

There were numerous tributes to Amberlin at the time. I'll list just a couple.
http://thoughtsaboutme.com/2011/10/06/amberlin-nothing-is-for-nothing/
http://mecfsfromme.blogspot.ca/2011/10/what-to-do-in-honor-of-amberlin-wu.html

Best Wishes Roxie

 

[minkeygirl]

Thanks. Really good

 

[Ayaju]

I watched the interview "two gals" video and was so impressed with these two women and how they nailed it about CFS/ME!
Then I saw the shocking posting that one of the women, Amberlin Wu, died two years ago. I've been spending time on the internet reading about her and watching more videos about and from her.
My heart is so deeply moved.
Judy

 

[roxie60]

I did not know she died. This was the only video I found today and cant remember what brought me to this video but like you I thought they did such a great job of communicating. I wanted to let them know how much I appreciated. Sad to here she has passed.

 

[Raindrop]

Thank you for sharing this video! The two of them were so spontaneous and "real" and I could relate
to every word. I can't believe, after learning about Amberlin, that she has passed on. What a real
loss to the community of people who knew her! She was a great person and tremendous CFS support.
I think that if we had more ways to Sykpe with a few people it would ease the isolation for many of us.
Is there a way to do this without divulging confidentiality with everyone? I have wanted to start a support
group as she did, but it does take great energy!

 

[shannah]

I did not know she died. This was the only video I found today and cant remember what brought me to this video but like you I thought they did such a great job of communicating. I wanted to let them know how much I appreciated. Sad to here she has passed.

Here's a blog she kept.
http://bealightcfsawareness.blogspot.ca/
and another video she made

a news article on her
http://www.mv-voice.com/news/2010/12/02/sick-and-tired-of-chronic-fatigue-syndrome
a couple of tributes
http://www.chronicmuse.com/musings/remembering-amberlin-wu/

a PR thread which quite likely contains more links
http://forums.phoenixrising.me/index.php?threads/amberlin-wu-died-on-october-4-2011.12601/

There was a lot written about her at the time. Amberlin was well liked. A lot of us slip into obscurity or pass on unnoticed but Amberlin's passing hit the community hard.

 

[SickOfSickness]

I think that if we had more ways to Sykpe with a few people it would ease the isolation for many of us.
Is there a way to do this without divulging confidentiality with everyone? I have wanted to start a support
group as she did, but it does take great energy!

Some ME/CFS patients meet on Second Life for voice chat, and you don't reveal anything like phone number or name. I don't know much about it but there are posts about it.

 

[kisekishiawase]

this is really touching. i read the article about her. its so sad that shes gone now
"sick and tired of being sick and tired"
"I don't have any plans," she says in exasperation. "Everything I've ever planned in my life got cancelled."
thats really got into me.
@Raindrop thats a good idea. count me in
@SickOfSickness
really?
secondlife game ive tried that before for a while. awsome graphic lol isnt skype better? can chat or voice chat or video.
all for free

 

[SickOfSickness]

In Second Life, I believe it is like a group gathering. For Skype your contact person has to be online and available.

 

[kisekishiawase]

In Second Life, I believe it is like a group gathering. For Skype your contact person has to be online and available.

i see. im not really familiar with SL but isnt the program heavy cause the awsome graphic, etc.
skype group could be good or maybe yahoo messenger.
could do it from the phone too.