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GOOD things happening!! Am I a responder???

Discussion in 'Rituximab: News and Research' started by Jacque, Aug 27, 2012.

  1. Jacque

    Jacque Senior Member

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    USA - California
    Well you just described my life to a TEE!!! But this is nothing NEW.... I have been like this for years...and yes have the terrible BONE pain too.... I think about suicide more than I care to admit....! But my kids and grandkids are my anchors to this world.

    So do tell how you think you managed to escape HELL.... I have been in this pain for yearrrrrrrs but it does seem to be gettin WORSE not better..... I am truly so thrilled for you!!!! Truly! This is a living HELL.... and it is stealing my very soul from me.....

    Do you have Lyme??? Sure sounds like it....
     
  2. Jacque

    Jacque Senior Member

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    USA - California
    I have taken it in the past but am gettin back on it... Dr. Goldstein recommends it as wel as Inositol...
     
  3. Starfive

    Starfive

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    and what is this off the charts bone pain about? Any doctors have a clue or say anything about all these very nasty hard to endure pains? Dr. K? Dr KM? Cheney?
     
  4. Jacque

    Jacque Senior Member

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    Dr. K just looks at me and says "interesting".... ugggggh... I think it is Lyme... very normal with Lyme... The spirochetes infect the lining of the bones... All of my bones are very TENDER to the touch... and when I go on any Lyme killing agent my skeleton feels lit on fire.... I cannot tolerate any Lyme killing attempts as I herx too severely!
     
  5. Jacque

    Jacque Senior Member

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    USA - California
    You are describing my life completely....but I can still be hugged! And I don't want to admit how much I think about suicide....but my kids and grandchildren...keep me here ...for now.... what do you think you did to get out of the pain????
     

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