Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Good site for up-to-date research papers

Discussion in 'Latest ME/CFS Research' started by Jenny, Nov 12, 2009.

  1. Jenny

    Jenny Senior Member

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  2. Dolphin

    Dolphin Senior Member

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    http://freespace.virgin.net/david.axford/me/me.htmYes, I'd recommend this site too.

    Most of it is written by Ellen Goudsmit Ph.D, who did her PhD on ME.

    She does quarterly updates with the abstracts of most or nearly all of the papers from the period included. But the particularly interesting bits are when she quotes bits from the full papers and/or puts her own comments on the papers.

    However, just reading the updates are only part of the benefit of the site. She really knows the literature inside out and particularly the flaws in the studies and views of those of the "CBT School of Thought with regard to CFS" i.e. those who think all we need to do is graded activity/exercise programmes and/or CBT to encourage us to do graded activity/exercise programmes. She is a patient - I think patients in this illness are often better at spotting the B*llsh*t written about us.
     

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