Hello All I think I need to see a specialist about managing my POTS (confirmed by tilt table test 3 or 4 years ago). I have been taking 20mg propanololx2 a day for a number of years which certainly increases my ability to be upright during the day. I eat some extra salt and drink plenty of fluids (maybe 3 L a day) . I tried Florinef for potential blood volume issues and this was absolutely brilliant at first, I felt wonderful but after a few months it became less effective and then eventually started giving me very frequent migraines headaches (without any of my usual triggers). The migraines have stopped since I discontinued Florinef. But now I'm close to housebound again a lot of the time. I have also tried a small dose of Calcium channel blocker but this had no effect. I don't have much wiggle room as (when taking propanolol) my blood pressure hovers around 105/60 and pulse 55 bpm. I have lots of allergies and develop new food intolerances frequently since getting ME 11 or so years ago. I think I need to see a POTS specialist to get advice on how to go forward here - preferably one who understands the basics of ME. I've seen Dr Vallings. I live in NZ (wellington region) but I'm prepared to travel, including Australia. Any suggestions? All help greatly appreciated. OTH.