The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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Good POTS articles to show reluctant Doctor

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Morgaine, Aug 28, 2011.

  1. Morgaine

    Morgaine

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    Can anyone recommend some good articles to print out & give a friend of mine whose doctor thinks that if you are not passing out all the time, then you can't have POTS. Preferably some that have suggestions about possible treatments.

    :thumbsup:
     
  2. Marg

    Marg Senior Member

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    Wetumpka Alabama
    I would suggest www.oiresource.com or Dr Bells'site. Dr. Bell may be on Youu Tube about it. I seem to remember he discovered all the differnt kinds of OI.
     
  3. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    Try this. I am on this forum. Lots of information on this page. Good information about different forms of Dysautonomia. I have added a couple of links for you.

    Passing out, or Syncope is not needed with POTS. That is totally diff. About 30% of POTS patients have Syncope. Low blood pressure is separate.

    You rarely find good info about supplements for POTS/CFS. Integrative docs can help.

    http://www.dinet.org/

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1501099/

    http://www.chronic-illness.org/blog/postural-tachycardia-syndrome-pots
     
  4. ahimsa

    ahimsa Senior Member

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    Oregon, USA
    The Johns Hopkins handout on Orthostatic Intolerance (both POTS and NMH) is available in a PDF here - http://www.cfids.org/webinar/cfsinfo2010.pdf . It includes treatment suggestions.

    And here's the web page from the "Research 1st" web site (from the CFIDS Association) - http://www.research1st.com/2011/06/19/the-outs-and-ins-of-oi/

    One extract from this web page:

     
  5. Morgaine

    Morgaine

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    Thanks for the links, guys. I've passed on the info to my friend. :)
     

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