Good POTS articles to show reluctant Doctor

[Morgaine]

Can anyone recommend some good articles to print out & give a friend of mine whose doctor thinks that if you are not passing out all the time, then you can't have POTS. Preferably some that have suggestions about possible treatments.

 

[Marg]

I would suggest www.oiresource.com or Dr Bells'site. Dr. Bell may be on Youu Tube about it. I seem to remember he discovered all the differnt kinds of OI.

 

[Sallysblooms]

Try this. I am on this forum. Lots of information on this page. Good information about different forms of Dysautonomia. I have added a couple of links for you.

Passing out, or Syncope is not needed with POTS. That is totally diff. About 30% of POTS patients have Syncope. Low blood pressure is separate.

You rarely find good info about supplements for POTS/CFS. Integrative docs can help.

http://www.dinet.org/

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1501099/

http://www.chronic-illness.org/blog/postural-tachycardia-syndrome-pots

 

[ahimsa]

The Johns Hopkins handout on Orthostatic Intolerance (both POTS and NMH) is available in a PDF here - http://www.cfids.org/webinar/cfsinfo2010.pdf . It includes treatment suggestions.

And here's the web page from the "Research 1st" web site (from the CFIDS Association) - http://www.research1st.com/2011/06/19/the-outs-and-ins-of-oi/

One extract from this web page:

There are many types of OI. When you round up experts who study the autonomic nervous system (as we did at one of our research symposia in the year 2000), they have trouble agreeing on the names and definitions for the various types of OI. (Does that sound familiar?)

 

[Morgaine]

Thanks for the links, guys. I've passed on the info to my friend.