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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Good POTS articles to show reluctant Doctor

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Morgaine, Aug 28, 2011.

  1. Morgaine

    Morgaine

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    Can anyone recommend some good articles to print out & give a friend of mine whose doctor thinks that if you are not passing out all the time, then you can't have POTS. Preferably some that have suggestions about possible treatments.

    :thumbsup:
  2. Marg

    Marg Senior Member

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    Wetumpka Alabama
    I would suggest www.oiresource.com or Dr Bells'site. Dr. Bell may be on Youu Tube about it. I seem to remember he discovered all the differnt kinds of OI.
  3. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    Try this. I am on this forum. Lots of information on this page. Good information about different forms of Dysautonomia. I have added a couple of links for you.

    Passing out, or Syncope is not needed with POTS. That is totally diff. About 30% of POTS patients have Syncope. Low blood pressure is separate.

    You rarely find good info about supplements for POTS/CFS. Integrative docs can help.

    http://www.dinet.org/

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1501099/

    http://www.chronic-illness.org/blog/postural-tachycardia-syndrome-pots
  4. ahimsa

    ahimsa Senior Member

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    Oregon, USA
    The Johns Hopkins handout on Orthostatic Intolerance (both POTS and NMH) is available in a PDF here - http://www.cfids.org/webinar/cfsinfo2010.pdf . It includes treatment suggestions.

    And here's the web page from the "Research 1st" web site (from the CFIDS Association) - http://www.research1st.com/2011/06/19/the-outs-and-ins-of-oi/

    One extract from this web page:

  5. Morgaine

    Morgaine

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    Thanks for the links, guys. I've passed on the info to my friend. :)

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