Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Good piece by Jerome Burne (independent journalist) on PACE Trial (September 26)

Discussion in 'General ME/CFS News' started by Tom Kindlon, Sep 29, 2016.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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  2. Tom Kindlon

    Tom Kindlon Senior Member

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  3. Tom Kindlon

    Tom Kindlon Senior Member

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  4. worldbackwards

    worldbackwards A unique snowflake

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    Interesting comment from the author on trying to get a similar story published in the popular press:
     
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  5. worldbackwards

    worldbackwards A unique snowflake

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    @Marky90, your fame spreads far and wide!
     
  6. Sidereal

    Sidereal Senior Member

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    Best not to heckle them in the future. Had that incident not happened, the ME/CFS community would have kept a clean sheet as far as 'harassment' goes (not that heckling is harassment but it's still something unpleasant that they can point to and exaggerate out of all proportion when it suits them).
     
  7. worldbackwards

    worldbackwards A unique snowflake

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    You're right of course, but it is amusing that that is all they can pull up. You'd think it was like Beruit or something the way they go on.
     
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  8. Yogi

    Yogi Senior Member

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    It is good he is looking into this. However over the last two decades when I have opened the newspaper and turned on the TV the media has reported on Afghanistan Iraq, Iran, Syria, Rwanda, N Ireland, Israel, N Korea, Somalia, Egypt, Lebanon, Yemen, Ukraine, and they weren't afraid to report on these conflicts.

    Is this issue worse than those??

    Silly me - I thought the media reported on issues rather than being the United Nations and trying to broker a deal??
     
    Last edited: Sep 29, 2016
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  9. TiredSam

    TiredSam The wise nematode hibernates

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    I thought newspapers loved reporting on controversial issues where their readers got involved in "the debate". Or is that only if Rod Liddle is doing the reporting?
     
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  10. worldbackwards

    worldbackwards A unique snowflake

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    Yes, it's notable no-one's too worried about indulging his interventions.
     
  11. Tom Kindlon

    Tom Kindlon Senior Member

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  12. Dolphin

    Dolphin Senior Member

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    I think one possible issue is that the pieces the journalists publish are often criticised by people in the ME community. Journalists don't necessarily like their work being criticised especially if they are not opinion-based journalist. Journalists can also often be freelance or not in secure positions.

    Something to keep in mind I think. Things like "ME also known as chronic fatigue syndrome" for example may not be worth strong criticism.

    Journalists might feel that no matter how hard they try, they will be criticised.
     
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  13. Yogi

    Yogi Senior Member

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    I don't know journalists usually love controversial issues and lots of clicks and comments.

    There are many controversial issues which they cover widely including Islamic terrorism and Israel/Palestine and are not afraid to do so. They get lots of criticism from both sides of these issues. Again is this issue even more controversial?

    I agree no point nit-picking. I assume the criticism is in the comments section - that is what it for?
     
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  14. Glycon

    Glycon World's Most Dangerous Hand Puppet

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    This. Not only is it not worth the waste of one's limited time and energy, but it is technically true. ;)

    What SHOULD be criticized is "doctors vs patients" narrative, when it is in fact "doctors following government guidelines vs majority of rigorous scientific research".
     
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  15. worldbackwards

    worldbackwards A unique snowflake

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    Yeah, to be fair it probably feels comparatively worse than most subjects in how closely and harshly it's scrutinised.

    For example, I think it's fair to say that Isabel Hardman made a botch of her article last year. But I think, ineptness aside, she genuinely wanted to help and it was notable that when, say, Tom and Bob engaged with her, she was happy to talk and said so in her revisions. However, when James Coyne called her a bitch, she inexplicably became a tad upset.

    Of course Coyne isn't a patient and is a law unto himself (alas...), but it is an example of how quickly people are prepared to have a go and how counterproductive it can be. People like Liddle are, of course, way beyond talking, but in some cases it may be better to engage with constructive criticism than just let rip and not everyone seems to realise this. And as you point out, some things are hardly worth criticising.
     
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  16. TiredSam

    TiredSam The wise nematode hibernates

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    I know we can be a tough crowd, but aren't journalists these days used to criticism from trolls with an axe to grind on any issue they write about? Is there any evidence that readers with ME are any more vexatious than readers who feel involved / affected by any other controversial topic? Did readers in the UK politely refrain from commenting on Brexit articles before and after the in/out vote, lest they upset the journalists' sensibilities? Or did they nit-pick and troll away to their heart's content, without fear that the subject wouldn't be covered again if they didn't behave themselves?

    Anything that even hints at the "vexatious ME sufferers as the authors of their own misfortune" narrative should be closely scrutinised, in whatever context it arises. I'd hazard a guess that our contributions to comments sections are more politely expressed and better informed than the average.
     
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  17. worldbackwards

    worldbackwards A unique snowflake

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    To be fair, political journalists can't avoid writing about Brexit or Jeremy Corbyn, it's their primary job and they rarely stop whinging about the hassle they get on Twitter and the like. Health journos can quite easily duck out on ME and do so.
     
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  18. TiredSam

    TiredSam The wise nematode hibernates

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    Hmph.
     
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  19. BurnA

    BurnA Senior Member

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    Agreed, sometimes just like in real life, it pays to bite your tongue.
    Topic for another thread maybe.
     
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  20. leela

    leela Slow But Hopeful

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    Wasn't it Wessely who said he felt safer in Afghanistan than in the company of ME patients? Which slander, by the way, he ought to be forced to apologise for.
     

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