Good news from the NIH by P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc. on Thursday, December 30, 2010 at 12:43pm.We are pleased to announce that Dr. Dennis Mangan, with the National Institutes of Health, has asked patient organizations for nominees of patients to sit on the Steering Committee for the NIH State of Knowledge Workshop on ME/CFS, scheduled for April 7-8. Among the nominees, the NIH will be choosing at least two to serve. PANDORA was one of the organizations approached. We then invited input from many trusted long-time advocates and other patient organizations. After confirming who was able to serve, PANDORA plans to submit the following individuals as qualified candidates: Mary Schweitzer Pat Fero Cort Johnson Rebecca Artman Brian Smith Lee Meisel David Adonailo Marly Silverman Brian Smith Bob Miller Alan Gurwitt As far as we know, this is the first time the NIH has invited patients to sit on this research steering committee. We are beginning to see the changes we have been urging for decades. We recommend all patients join us in commending Mangan for taking this first step. By inviting patients to the decision-making table, the NIH is now showing transparency and a willingness to be responsive to patient concerns. We look forward to more opportunities for patient influence. Now is the time to unite.