Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Good article from a Jørgen Jelstad

Discussion in 'General ME/CFS News' started by user9876, Oct 22, 2012.

  1. user9876

    user9876 Senior Member

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    This is a good article talking about the need to have an accurate diagnosis for research.I think many of these discussions have been had on other threads but this article pulls things together nicely.

    http://translate.google.com/transla...2/10/21/diagnoseforvirringen/&act=url&act=url

    Original (http://debortgjemte.com/2012/10/21/diagnoseforvirringen/)

    There is also a good discussion of the ME/CFS naming issues in one comment. Jorgen basically expresses the view that the name will change as causal mechanisms are found.
     
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  2. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Hi user9876, the fact is the name WILL change as science advances, and we wont be doing it, the scientists will be. This has happened with all other diseases. I have been saying this for years. So the name is less relevant now than the diagnostic criteria used in studies - its advancing the science faster that is the reason to choose ME definitions. Bye, Alex

    PS Since 1970 ME has been attributed to hysteria, and hence psychosomatic, by some psychiatrists - it was claimed that the Royal Free epidemic was mass hysteria. Removing the label CFS will not help with this unless strict ME diagnostic criteria can be mandated. To really get things moving we need an obvious, mechanistically understood, and highly validated biomarker.
     
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  3. user9876

    user9876 Senior Member

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    From a research perspective I quite like the approach of having a very restrictive set of patients say those with particular immune system issues. I don't think that would necessarily cover all ME patients but it may identify a consistant group to study. This may help enhance understanding and then move onto other clearly defineable groups
     
    Bob likes this.
  4. Enid

    Enid Senior Member

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    Thanks user9876 - that is good to see - friends in Norway and though they found Rituximab focussing attention on immune dysfunction, they continue to advance ME.
     

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