Gone? Australian ME/CFS research and other things affected?

[taniaaust1]

Im shocked to just notice that the Alison Hunter Memorial Foundation seems to be gone from online.

Many will know this foundation has been responsible for funding biomedical Australian ME/CFS studies over the past 10 or so years or for good education over here in ME (they never funded psych studies).

They funded ME/CFS stuff worldwide including helping Invest in ME fund and produce the DVDs of their ME/CFS conferences. (You'll see this group mentioned on many of these DVDs)

They were responsible for bringing over some of the worlds top ME/CFS specialists to give lectures to interested Australia doctors and the patient group working hard to try to educate any interested Aussie doctors. They brought over to Australia the likes of Dr Peterson and other well known ME names to lecture our doctors etc.

Now where the heck has this group who'd done so much for so long for ME education...where's it gone? what has happened? Does anyone know? This will be a big loss.

 

[alex3619]

Mrs. Hunter was very sick last I heard. This might have something to do with that. This memorial foundation did so much good. Other than that I have not heard anything.

 

[alex3619]

PS This is about the domain name not being renewed. This might be just an oversight, but not if it persists.

 

[Sean]

Still online for me.

http://www.ahmf.org

 

[WillowJ]

Glad the site came back up.

 

[taniaaust1]

Ah great to see the website is back, guess they forgot the renew the domain name there for a bit. **sigh of relief to see that back, we cant afford to loose what little we have now out there**

 

[taniaaust1]

I don't know how I missed seeing the following now that website is back before. @alex3619 maybe you didn't notice the following either. It's merged.

"Announcement: The Alison Hunter Memorial Foundation (AHMF) has operated as a non-profit institution from 1998 to 2014, to advance scientific knowledge and medical care.

The Board of AHMF is delighted to announce the formal establishment of a partnership with the National Centre for Neuroimmunology and Emerging Diseases (N.C.N.E.D.) at Griffith University, Queensland.
The team at Griffith University led by Professor Sonya Marshall-Gradisnik is undertaking vital immunological and genetic research.

The AHMF is therefore ceasing operation as an institution with independent charity status.
The focus of the AHMF will now be to support the groundbreaking research being carried out at N.C.N.E.D.
Donations in the future should therefore be directed to: 'Griffith University, National Centre forNeuroimmunology and Emerging Diseases (AHMF)'" http://www.ahmf.org/

 

[Snow Leopard]

Much of the Australian funding was from the Judith Jane Mason & Harold Stannett Williams Memorial Foundation, rather than the Alison Hunter Memorial Foundation (that was more involved in advocacy).

 

[taniaaust1]

Much of the Australian funding was from the Judith Jane Mason & Harold Stannett Williams Memorial Foundation, rather than the Alison Hunter Memorial Foundation (that was more involved in advocacy).

Yeah they Mason Foundation does tons too and is a huge funder of Australian ME/CFS research. Other then these two.. I think the Queensland gov is the only other place Australian ME/CFS funding comes from.