I was thinking about the isolation of this illness. And how it must be for those who, for whatever reason, technical, educational, social, have no access to our sites. How isolated they are. More than each of us, being able to communicate, commiserate, virtually coexist. And how to find them. I thought: not go fund me, rather go find me. Wouldn't that be something. To find our compatriots and bring them this modicum of comfort. They are the most missing of us.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Go Find Me
- Thread starter flitza
- Start date
alex3619
Senior Member
- Messages
- 13,810
- Location
- Logan, Queensland, Australia
I am most concerned about those who are simply too sick to use even a tablet. They need it the most and simply cannot engage with others that way.
Membership of sites like this one is continuing to grow. Once others get involved in social media, and if they have ME or similar, most will eventually find some place they can go online.
Membership of sites like this one is continuing to grow. Once others get involved in social media, and if they have ME or similar, most will eventually find some place they can go online.