Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Gluten Sensitivity Without Celiac Disease — A New Twist

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by MeSci, Oct 28, 2013.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Apologies if this has already been posted, and I hope it's in the right forum, but I note some other threads in this forum that refer to FODMAPS.

    From http://www.jwatch.org/na32277/2013/...eliac-disease-new-twist?query=topic_nutrition

     
  2. Valentijn

    Valentijn Activity Level: 3

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    Interesting stuff ... one thing I found recently when looking at my rare 23andMe data is that I am homozygous for a very rare genotype on the MGAM gene, which involves the breakdown of oligosaccharides. I wonder if that might be responsible for my "gluten" and other intolerances. It's at rs12703419 with CC as the very rare version, though CT is pretty rare as well.
     
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  3. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I certainly think it likely that many of us have an abnormality of carb metabolism, hence our improvement on a low-carb diet.

    I'm slightly dismayed at the possibility that my low-GI sweetener xylitol may be problematic, being a polyol, but I don't like unsweetened hot drinks and don't know of any other suitable sweetener. Maybe the small amount I have isn't a problem (I hope!).
     
  4. xchocoholic

    xchocoholic Senior Member

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    Certainly the author of this paper knows that even some celiacs can eat gluten without feeling anything.

    Looking at antibodies or villi would've been more scientific.
     
  5. xchocoholic

    xchocoholic Senior Member

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    My problem with carbs appears to be from hyperinsulinemia. I felt horrible, sweats, sleepy, nauseas, during the gtt plus insulin and recognize
    this if I've had too many carbs.
     
  6. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    The paper is about people without celiac disease.
     
  7. xchocoholic

    xchocoholic Senior Member

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    Yes I know. But if some celiacs can eat gluten without feeling it then why assume others will feel anything.

    Tests to confirm reactions woulda been helpful.
     
  8. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Oh, OK. I didn't realise some celiacs could eat gluten without getting reactions.
     
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  9. xchocoholic

    xchocoholic Senior Member

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    Forgot to say that based on the info I've seen in the gf world in the last 8 years, the medical professionals involved in the upcoming gluten summit are the experts in this arena. : ) tc ... x
     

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