1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
Discuss the article on the Forums.

Global Campaign to ban blood donations from people with ME

Discussion in 'Action Alerts and Advocacy' started by fred, Apr 8, 2010.

  1. Galena1

    Galena1

    Messages:
    59
    Likes:
    0
    South West UK
    Hi All - I telephoned the UK Blood Donor people today. After being on hold for a while was informed that they are NOT accepting blood from ME/CFS sufferers until they are cured. Looks like they'll have a long wait. Given the responses of some other countries this seems irresponsible to me.
     
  2. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    I believe they have had a blood ban on ME patients since at least 1989, until 'cured'.
     
  3. taniaaust1

    taniaaust1

    Messages:
    8,227
    Likes:
    5,196
    Sth Australia
    There is a ban on those with CFS/ME donating blood too in Australia, Australia quickly followed Canada when Canada banned. (just thought i'd let you know as Im not sure you knew that).

    Ive noticed the media overseas to me has been not reporting that its actually banned in Australia (rather then just being a recommendation not to donate). By not reporting actual ban, they play the whole situation down.

    I think New Zealand also put a ban in place (but that will have to be checked on).

    nods yeah.. as far as I know England has banned CFSers from donating (which i find kind of interesting as they push so strongly over CFS psychological view). Its America who has yet to use the word "ban" and needs more pressure put on it to completely ban CFS blood. (There is a very strong undercurrent in America not to change things).
     
  4. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    Yea, I had heard about the blood bans. I believe in the UK they have banned blood donation from at least 1989. Unless 'recovered'. Yea, right.
     

See more popular forum discussions.

Share This Page