I, like many with Chronic Fatigue Syndrome or whatever name you want to call it now, get up late in the day. Especially since I've had surgery, I usually don't get up before noon. Every friend I have gets up at 6:30 in the morning. They are all well of course because I don't know people in my area that have this disease. No matter how many times I tell them that I don't wake up early and that I can't wake up early they don't hear me. I had a friend, the other day, ask me to go to a flower show in the city. They were going to be going on the train and I was to meet them at the train at 9 AM. I thought to myself, are you kidding me? I didn't go, of course. My best friend just emailed me and said that she would like to come over next week and help me to start making jewelry again. She said that she could come over on Thursday at 10 in the morning. This is a friend I've had for 13 years who knows I cannot get up early. I don't know what I have to do to make people understand that I do not wake up early. I would like to send everyone a flyer saying that I have a job and that job is during the night shift- I work from midnight until five in the morning so I will not be able to do anything until around 2 PM. If I had a job that was during the night shift they would understand, but because I have an illness, everyone thinks that I can just wake up and go and make myself do this. I don't understand it and I feel like it's a mental block on their part to not understand that I cannot get up. And I'm so angry about it that I could scream. This close friend of mine goes to bed at 8:30 every night. I don't know other people who go to bed that early. I respect that. I don't ever call her after 7:30 at night and I don't understand why she can't respect my need to get up late. It's not a choice, it's just something I have to do because of my condition. She has to go to bed early because she has to get up at 5:30 in the morning and she needs nine hours of sleep and I totally get it. I'm tired of defending myself because that's what they make me do and I'm tired of having to explain this over and over again. I am at my wits end about it and I am unsure of what to do. Before anyone says give them a pamphlet about this condition, at this point, that wouldn't make a difference because honestly they don't give a crap. That's what's going on here. They don't have it, they get up at 6:30 in the morning, they can't understand how other people don't.