How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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Getting to the Root of the issue - Dorsal Root Ganglionitis

Discussion in 'General ME/CFS News' started by Firestormm, Nov 11, 2012.

  1. user9876

    user9876 Senior Member

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    NK17 and Enid like this.
  2. Firestormm

    Firestormm Guest

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    Cornwall England
    Yeah I read that one too User. Was hoping for some more information. I suppose they will be asking for 'donations' and will need these before they can publish anything. Not like one has a freezer-full of dead ME patients is it?! :)
     
  3. user9876

    user9876 Senior Member

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    What they say about the trial suggests that they have funding.

    I think it is hopeful that they are not satisfied with just doing a rituximab trial but are trying to understand ME as a disease hence looking into a possible site of imflamation. Its good to see people trying to fit the pieces together.
     
    rosie26, alex3619, NK17 and 3 others like this.
  4. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    The Norwegian researchers are out of the box thinkers, I think. We need that. At least some doctors were using CPET, for example, decades ago to test ME and CFS patients. Yet nothing happened with it. Similarly we have known that blood from newly infected ME patients might have a transmissible pathogen since 1955. Yet how much research is going into this? Too much gets overlooked, its nice when someone opens up their toolbox and tries a screwdriver instead of a hammer.
     

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