Surprisingly good outcomes for people who get ME/CFS after Mononucleosis (Glandular Fever)
Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath shares results from a long-term follow-up study from Haukeland University Hospital in Norway...
Discuss the article on the Forums.

Getting Migraines Under Control with a Cefaly device

Discussion in 'General ME/CFS Discussion' started by bertiedog, Jan 31, 2014.

  1. Ema

    Ema Senior Member

    Messages:
    3,593
    Likes:
    4,339
    Midwest USA
    Mine had almost completely gone as well with HC and antiviral treatments...but when I started the Mepron in Feb, they came back with a vengeance. And now it's *only* a couple a week, but it's still too much. Although headaches are a sign of babesia too, so who knows! I may have just stirred something up that will calm down again eventually.
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    8,122
    Likes:
    8,282
    Albuquerque
    I just got back a test that could indicate Babesia. :(

    Sushi
     
  3. Ema

    Ema Senior Member

    Messages:
    3,593
    Likes:
    4,339
    Midwest USA
    Oh no. I'm sorry. That has been a tough one for me to handle (and I didn't even have any of the typical symptoms). Let me know if you want to chat about treatment...
     
  4. KelcieLe

    KelcieLe

    Messages:
    2
    Likes:
    0
    Thank you so much for sharing your experience with us.
     
  5. silverseas2014

    silverseas2014

    Messages:
    29
    Likes:
    24
    Southwest
    I have made a big note for the Cephaly device. Right now I am in the middle of trialling large doses of B2 (Riboflavin). I am taking 400mg to 600mg each day to prevent migraines. Up to this point, I haven't found anything effective but Imitrex which does stop them, but does funny things to my heart and breathing. I am hopeful about the Riboflavin, but if it does not work I have something to try next.

    Thanks,
    Silverseas2014
     
    vli likes this.
  6. bertiedog

    bertiedog Senior Member

    Messages:
    473
    Likes:
    332
    I should report back that unfortunately the Cefaly stopped working for me after a month or so. I still use it when I have a migraine but cannot say it ever gets rid of it now but maybe helps a bit when I have taken painkillers including Imitrex. I also find that the replacement pads don't last very long however careful one is so it does work out to be rather expensive.

    @silverseas2014 I have been taking 300 mg B2 daily for quite a number of years but it doesn't stop the migraines from starting unfortunately.

    The most effective thing for stopping a run of migraines for me is still acupuncture with a local Chinese doctor who also does a very strong and painful massage after on my head, neck and shoulders. But even with regular acupuncture I still get at least one or 2 migraines a week, though they can vary enormously in how bad they are.

    Pam
     
  7. vli

    vli

    Messages:
    2,176
    Likes:
    2,347
    CA
    Hello. Just curious as to whether you've ever come across this place? https://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?submit=submit
    I know it says 'cluster headaches' but pretty much everything they've said applies to me (a migraineur).
     
  8. leela

    leela Slow But Hopeful

    Messages:
    2,529
    Likes:
    3,305
    Couchland, USA
    ww @vli, that's a cool forum. thanks for the link.
     
    vli likes this.

See more popular forum discussions.

Share This Page