May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
Discuss the article on the Forums.

Get a Ringside Seat for Invest in ME’s 10th International Conference on 29 May

Discussion in 'Phoenix Rising Articles' started by Sasha, May 27, 2015.

  1. rosie26

    rosie26 Senior Member

    Messages:
    2,420
    Likes:
    5,166
    I feel so much relief that research is looking so much better for us. Can't thank these researchers enough for their determination and focus. It is all very encouraging. Thanks to all who reported from the conference, it was great. I think we all would have loved to have been there and to have heard the embargoed things - will have to have patience.
     
    Sushi, mango, Battery Muncher and 4 others like this.
  2. Kate_UK

    Kate_UK Senior Member

    Messages:
    256
    Likes:
    318
    Thank you for the conference reports. Invest in ME are great.
     
    Sean, mermaid, Sasha and 1 other person like this.
  3. Valerie Eliot Smith

    Valerie Eliot Smith

    Messages:
    14
    Likes:
    182
    London, UK
    This isn't going to help anyone with the science but I'm posting it because of my acknowledgment to PR for the tweets from the conference. The rest is mostly my personal observations from the day plus some links which aren't new but might be of use to some http://valerieeliotsmith.com/2015/06/04/science-versus-history-a-snapshot-of-invest-in-mes-10th-annual-conference/
     
    Kyla, shannah, rosie26 and 4 others like this.
  4. JaimeS

    JaimeS Senior Member

    Messages:
    3,212
    Likes:
    11,855
    Mid-Ohio Valley, United States
    I want to order the DVD, but my bank won't let me order overseas without Special Permission...

    Last time I tried to get it, they accidentally cancelled the card. :bang-head:

    -J
     
    aimossy likes this.
  5. lansbergen

    lansbergen Senior Member

    Messages:
    2,509
    Likes:
    2,718
    Can't you use paypall?
     
  6. Sasha

    Sasha Fine, thank you

    Messages:
    12,803
    Likes:
    34,275
    UK
    Kyla, Hutan, Bob and 1 other person like this.
  7. aimossy

    aimossy Senior Member

    Messages:
    1,096
    Likes:
    3,793
    Sasha likes this.
  8. Sasha

    Sasha Fine, thank you

    Messages:
    12,803
    Likes:
    34,275
    UK
    Just received an email update:

     
  9. Battery Muncher

    Battery Muncher Senior Member

    Messages:
    620
    Likes:
    1,700
    Great news.

    I wonder if a downloadable version will be available that we could download straight off the website?
     
  10. Bob

    Bob

    Messages:
    9,872
    Likes:
    34,219
    England (south coast)
    No, it won't be available as a download or streaming. Invest in ME never provide a web version of their videos. I'm not sure why. Placing all of their conferences for sale on Vimeo might bring in some extra income.
     
    Last edited: Aug 1, 2015
    Battery Muncher and Sasha like this.
  11. Sasha

    Sasha Fine, thank you

    Messages:
    12,803
    Likes:
    34,275
    UK
    That's a great idea - perhaps someone would email them and suggest it. Very win-win, I'd have thought.
     
    Battery Muncher likes this.
  12. Sasha

    Sasha Fine, thank you

    Messages:
    12,803
    Likes:
    34,275
    UK
    Really looking forward to getting my DVD!
     
    mango likes this.
  13. RL_sparky

    RL_sparky Senior Member

    Messages:
    305
    Likes:
    1,549
    California
    So am I. I was just reading over Mark's excellent notes again about the conference. The only bummer with these DVDs will be the embargoed information that will be missing. Kind of like watching a movie and they cut the best parts out!
    Excerpt:

    Professor Mady Hornig:“2015 seems to be the year, in which we’re seeing so much coming together, and so much synergy, across the globe really”

    They’re planning a new follow-up microbiome study in association with the Chronic Fatigue Initiative (CFI).

    Specifically, noted eotaxin: 33 times the level of controls in the patients they studied.

    The embargoed content was the results of the metabolomics study, as Simon guessed. They’re still going through and analysing the results and trying to figure out what it all means. The one snippet she did let go looks to me like another important piece of the puzzle…but I’m not going to break the embargo on that…

    Professor Jonas Bergquist:
    The embargoed info in this presentation concerns a fairly small study which hasn’t been published yet, but again looks to me like a significant piece of the puzzle.
     
    rosie26, aimossy, Bob and 2 others like this.
  14. Research 1st

    Research 1st Severe ME, POTS & MCAS.

    Messages:
    697
    Likes:
    2,308
    Thanks for the update.

    That's interesting to know as this paper from the WPI showed increased Eotaxin levels in CFS patients with inflammation, including glial activation markers.

    Full PDF Link:
    http://iv.iiarjournals.org/content/25/3/307.full.pdf html

    It would nice to have a test for Eotaxin, and to see if forum members can replicate this approx 33 times increase, you mentioned. I wonder if there is a test commercially?
     
  15. RL_sparky

    RL_sparky Senior Member

    Messages:
    305
    Likes:
    1,549
    California
    I just did a brief search online and do not see a commercially available test. I'm sure will see one available if more patients exhibit these levels. I wonder if this is elevated in other disease groups?
     
  16. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,224
    Canada
    I think the Eotaxin findings were in Spinal fluid, so this would not likely be available commercially.
     
  17. Sasha

    Sasha Fine, thank you

    Messages:
    12,803
    Likes:
    34,275
    UK
    I don't really get what this eotaxin stuff is.

    o_O

    But @Jonathan Edwards - does this fit in with the autoimmune theory?
     
  18. RL_sparky

    RL_sparky Senior Member

    Messages:
    305
    Likes:
    1,549
    California
    I didn't know that..Thanks
     
    Kyla likes this.
  19. halcyon

    halcyon Senior Member

    Messages:
    2,330
    Likes:
    5,457
    Commercial assays clearly exist for eotaxin and other chemokines, but consumer labs like LabCorp and Quest don't seem to offer more than a handful of interleukin assays at this time.
     
  20. Scarecrow

    Scarecrow Revolting Peasant

    Messages:
    1,903
    Likes:
    5,385
    Scotland
    There was a discussion about eotaxin earlier in the thread for a couple of pages. There's also a link to another thread contained in the first post.
     

See more popular forum discussions.

Share This Page